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Cluster Headaches

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Old 17th Aug 2006, 17:59
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Cluster Headaches

Hi, I'm seriousley considering a career in aviation and am thinking of doing a CPL next year but I suffer from a condition known as cluster headaches. I wondered if this will prevent me from progressing any further with my dream of flying than posting this question?!
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Old 19th Aug 2006, 04:46
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Hi, I am a retired pilot with a special interest in classical migraine. Although what you have comes under a different category of headache, I wonder if there is any physiological similarity in the initial stages.

Probably the best goal would be to try to free yourself from these attacks. Easier said than done.

Your problem has started a little earlier than average, would you like to say a bit more about the history and severity. Clearly, if you were one of the unfortunate people that suffered severe cluster headaches, being flight crew would be utterly inappropriate.

Does your problem worsen if you have disrupted sleep patterns? [ Aircrew of course have these all the time. ] If so, have you taken any sleeping tablets to get you through the night...and if so, what type and did they help? Have you taken any drugs, specifically designed to alleviate your problem?
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Old 19th Aug 2006, 14:16
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Hi there Loose Rivets, thanks for your reply. Though experiance of meeting Migrain sufferers, cluster headaches have some similarities but are quite a different animal. I get bouts of attacks, 1 a day in the evening for about 2 weeks, once a year, usually between november and december. There is no loss of vision but one eye becomes inflamed and teary. The headaches are intensley painful and last for about one and a half to two hours.
The best treatments I have found are breathing pure oxygen with a mask and cylinder or a sumatriptan nasel spray. Both are highly effective in about 10 mins. Sleep patterns don't affect the problem, only alcohol and the time of year seem to be the trigger. Any more thoughts?
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Old 19th Aug 2006, 16:38
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I'm six hours behind you at the moment, and in the middle of a busy day, but will input again soon as pos.

Hopefully there will also be a professional or two with some knowledge of your problem.

EDIT for quick questions.

Re the time of year and timing factor, is there a trigger–like having been in cold air–on the way home from work for instance? And the big one is do you smoke? [ 80% of sufferers do.]
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Old 20th Aug 2006, 14:56
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I suggest you call the CAA at Gatwick and ask.
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Old 23rd Aug 2006, 22:35
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Loose Rivets !
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Old 24th Aug 2006, 01:15
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Angel

Hello there!
I think your main problem is that they seem to re-occur. I was diagnosed over a year ago with 'paroxismyl hemicrania' (not sure if that is spelt right!), also a type of cluster headache. I have been successful in obtaining a Class2 medical since I responded well to the medication and had been free from headaches for over 3 months, whilst obtaining this license, I also enquired about my ability to get a Class1 since my ultimate goal is to obtain an ATPL, and the CAA at Gatwick said that I would have to make an appointment to see their neurology expert for additional tests. I guess you would be in the same boat - the question is, will these tests trigger your debilitating headaches? Hopefully not - but you would have to take the chance.

GOOD LUCK - I wish you all the best!
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Old 24th Aug 2006, 17:42
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Thanks for your replies, nice to know of people with a similar problem who seem to be overcoming it, I thought I might not have a hope in hell! Will follow the advice and talk to CAA, Cheers
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Old 24th Aug 2006, 22:41
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I recently spoke to them re the fact i sufferred migraine several years ago - they are extremely helpful.
If you are serious about commencing training for a career I would seriously consider obtaining your class 1 before you even start your PPL. It is an additional expense early on but it's nothing to the cost of failing your class 1 when you have completed thousands of pounds of training!

Good luck
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Old 25th Aug 2006, 06:32
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Hi again. I was sort of waiting for a response to the last couple of questions, but your main question has been answered, at least to the point where you discuss it with aviation orientated specialists.

I have no magic bullet, and the following is just food for thought. It is little more than an unqualified blog, but it's worth some consideration it think. Indeed, I have almost scrapped it a couple of times, but with a certain amount of hesitation, I have put into words what I have come to [almost] believe over the last 40 years or so. Some of the patterns for migraine triggers happen time and time again. Deep underlying worry is the big one. Other triggers may be real, but are blurred because of the difficulty in making any form of controlled experiment. I have often mentioned cheese and chocolate, and am fairly convinced that these can be a trigger, but the patient may be susceptible due to deeper processing of fear.

I am not mentioning the dilation phase, because by then it is too late, the main thrust must be to stop the initial spasm.

My whole line of thinking–on several types of headaches–is the same. The gist is about the mind's perceived threat to its well-being. There seems to be a tendency for muscles to go into spasm–in a quite counter-productive way. The clamping of blood vessels is to save life following trauma, but there seems to be a way in which this happens because of some misinterpretation of a threat. An example might be where muscles round the throat suddenly lock up after a certain food or drink. There have been a lot of people leave a restaurant before eating, because of sherry. The ‘locked up throat' is very painful and of course the suffer has no idea what is happening.

I have to say at this point, that I have long pondered the idea about multiple-sentience being the norm in healthy people, and deep internal processing that really is behaving like a systems manager. However, it is though in certain tasks, it is woefully untrained. How could it be trained for the traces of Strontium 90 in our bodies for example. There was none until the first atomic explosions, and now every single mortal on Earth has traces. If it is self-analyzed, there is no program to handle the mixed messages that the mind receives from this new chemistry. It has not evolved yet.

One of my kids, who is highly qualified to research this type of problem, always cries ‘lack of empiricism!' a whole chunk of his life is spent steering his graduate students away from untested data. That's where the layman can have the advantage of thinking laterally. There is a chance that it will do some good, and with caution...and coupling with professional help, it is unlikely to do any harm.

Searching for a cause is not easy, the trigger may be chemical/hormonal or buried deep in the subconscious, but I feel sure that it is very specific. The type of asthma that is of this nature, is very difficult to stop. Some very fit people are suddenly disabled by broncho-spasm. It may have been caused by a reaction to perfectly clean, but cold, air. In some cases they are rendered virtually helpless in a few seconds, but the strange thing is that the clock starts ticking. At a very similar elapsed time each time, the spasm eases. That's a puzzle, and I can only liken it to a programed ‘procedure' and not a hard-to-control quantity of hormone.

It would be wonderful to be able to stop the mechanism that causes the problem, from triggering in the first place. I know to my cost that it is not easy. After weeks of pain in my eyes, and several visits to eye surgeons, I suddenly realized that it might be caused by a spasm in extra-ocular muscles. While I waited for a doctor's appointment, I tried very, very hard to make them relax. I failed totally, yet a significant attention-grabber, like someone pulling out in front of us while my wife was driving, would cause them to unlock for a moment. [This is what gave me the clue.] That story ended when I persuaded my GP to give me some Valium...a drug I'm passionately against being prescribed under normal circumstances. Within 30 mins, the pain had gone and my eyes focused again.

The main point of mentioning this is not that there may be a magic drug that will take away the problem...though there could be...but when I knew what was happening, I did not have to resort to Valium again more than a couple of times. I often speculate what goes on in the mind to suddenly stop bothering the sufferer with the reaction. Sometimes I think that somewhere deep down the mind says ‘okay, the game's up, I'll give up on that...for a while.'

There are a lot of cases where asthma sufferers are ‘cured' by starting to smoke very strong tobacco. ‘Never bothered me again.' they would say, but it's a shame that they had to be jumping into the metaphorical fire. But it was almost as though the mind said, ‘Well, if you're going to do that...there's no reason I should bother protecting you from cold air.'

Researchers would look carefully at the tobacco's effect on the lungs...but not into the mind's reaction to the smokey onslaught.

In your case, the end of year might be chill night air in those latter months, or some medication that you would take for a cold that often happens about that time of year. It might even just be the depressing loss of daylight heralding the end of the summer, never discount the mind's part in headaches.

Apart from the miserable pain, your career hopes are directly affected by this problem. There should be no limit on the detective work to find a cure, amelioration is not really good enough.

Extremely carful records of food/medication intake should be undertaken. Actions and thoughts listed just as meticulously. Just as with depression, the patient may think themselves into a altered condition. Depressive people often torture their own minds dozens of times a day with black thoughts. You should analyze your thinking at the critical times. Money, relationships, anything...get it down in strip form so that peaks will show against headaches.

If you do find significant peaks, it will be a beginning to beating it. At the very least, the action of the detective work will help with a bolstered state of mind in critical times.
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Old 25th Aug 2006, 17:43
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Loose rivets, you got this one ,
Exactly right about the empiricism, some time we just don't know why something works or doesn't

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