Reinards (sp)
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Reinards (sp)
My doctor has told me i have a slight case of reinards (not sure on the spelling, probably why i cant find info for it!), which makes my hands look...well... kinda pink if i'm honest! They look really cold, going pinky/bluey/purple and its very rare they look 'normal' and fit in the with the rest of my skin complextion (alien hands, wooo!)
I know they're not going to shrivel up and drop off any time soon and its nothing serious, other than it makes me susceptible to hot and cold and possibly poor circulation in my extemeties... but can someone explain what it is and what i can if anything to improve it or just make it look like i have my hands and not someone else's hands on my wrists!!
Thanks
I know they're not going to shrivel up and drop off any time soon and its nothing serious, other than it makes me susceptible to hot and cold and possibly poor circulation in my extemeties... but can someone explain what it is and what i can if anything to improve it or just make it look like i have my hands and not someone else's hands on my wrists!!
Thanks
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There is some info on this website which may help http://www.hyperhidrosis-usa.com/raynaud.html
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joe2812, I certainly sympathize with your situation and wish you the best. However, I have to wonder about either a doctor who cannot communicate accurately to you what he or she finds, or your own incomprehension of the finding. Surely if my own doc said I had Potrzebie's Syndrome, I would A) get the spelling straight, B) get the definition of the syndrome straight and relate that to my own symptoms as I observe them, C) have the resources to search the internet (google comes to mind) and learn probably more than my doc knows about Potrzebie's Syndrome. So I regret that I wonder first about your doc and second about your own use of available resources to research your question. The whole internet is at your disposal.
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Thanks for the advice from all most helpful! However I suggest you try searching for something you've only just heard of and don't know how to spell.
If you cannot offer any advice then i'd appreciate you keep comments on my ability to comprehend what i'm told to yourself. I do not appreciate public slatings when I was merely asking for advice.
If you cannot offer any advice then i'd appreciate you keep comments on my ability to comprehend what i'm told to yourself. I do not appreciate public slatings when I was merely asking for advice.
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It could be worse; my girlfriend has this and passes out on a regular basis... She is either too hot or too cold, generally the latter.
Bloody horrible being in bed and having the foot of death touch you!
joe2812, are you in aviation as if you are I would think this could be a big disadvantage if not the be all and end all? (Depending on which area)
Have not had to get insurance on the car for the girlfriend yet but im sure it would be difficult to impossible?
As for making your hands your own? You will learn over time which situations you body best reacts to.
General advice would be get a good pair of gloves, and if you really want get some of them funky re-chargeable hand warmers from most camp shops, you crack them and the chemicals warm up to make whichever part of your body you place them on toasty, then you recharge them and away you go again, only about £10.
Good luck
YYZ
Bloody horrible being in bed and having the foot of death touch you!
joe2812, are you in aviation as if you are I would think this could be a big disadvantage if not the be all and end all? (Depending on which area)
Have not had to get insurance on the car for the girlfriend yet but im sure it would be difficult to impossible?
As for making your hands your own? You will learn over time which situations you body best reacts to.
General advice would be get a good pair of gloves, and if you really want get some of them funky re-chargeable hand warmers from most camp shops, you crack them and the chemicals warm up to make whichever part of your body you place them on toasty, then you recharge them and away you go again, only about £10.
Good luck
YYZ
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As for being in bed with your girlfriend...I wouldnt know!
No, it's nothing serious like that, I don't feel ill or pass out or anything like that, infact my hands don't feel any different, they just look different. I suppose my problem isn't medical, more cosmetic, rather off-putting at work when customers wonder why your hands are slightly...odd... looking!
Really im just wondering if there's anything i can eat/drink/do to make them appear slightly more normal? Im a pretty fit guy, I dont drink excessively nor smoke and 'attacks' are pretty rare, once or twice a month at most. It's definately the heat that affects me, not the cold, so maybe i need ice-gloves instead. Anyone invented them yet?
Thanks for the advice YYZ, just for info i'm not in aviation, i'm only 17 and told its quite common in males?
No, it's nothing serious like that, I don't feel ill or pass out or anything like that, infact my hands don't feel any different, they just look different. I suppose my problem isn't medical, more cosmetic, rather off-putting at work when customers wonder why your hands are slightly...odd... looking!
Really im just wondering if there's anything i can eat/drink/do to make them appear slightly more normal? Im a pretty fit guy, I dont drink excessively nor smoke and 'attacks' are pretty rare, once or twice a month at most. It's definately the heat that affects me, not the cold, so maybe i need ice-gloves instead. Anyone invented them yet?
Thanks for the advice YYZ, just for info i'm not in aviation, i'm only 17 and told its quite common in males?
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Glad you have had no experience of my girlfriend, really
She is the opposite of you and is bothered more by the cold & the passing out thing is partly due to low blood pressure.
Wish I could suggest something but I can't, did the doctor not have any hints that may help?
If it's as common as he says there must be information on how to alleviate the problem?
YYZ
She is the opposite of you and is bothered more by the cold & the passing out thing is partly due to low blood pressure.
Wish I could suggest something but I can't, did the doctor not have any hints that may help?
If it's as common as he says there must be information on how to alleviate the problem?
YYZ
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You could try this site. Its an easy read and in questions and answers format.
http://www.niams.nih.gov/hi/topics/raynaud/ar125fs.htm
I've had a check back in Medical archieves and I don't think anyone has posted on this topic before.
cheers
H
http://www.niams.nih.gov/hi/topics/raynaud/ar125fs.htm
I've had a check back in Medical archieves and I don't think anyone has posted on this topic before.
cheers
H
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I have a friend who has Raynauds. I gather it's quite common, and there's quite a lot you can do. I think mainly you want to not get your hands or feet too hot or too cold, and have gloves or whatever around if you need them. I think my friend kind of tends to ignore it unless it gets really bad.
