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B*gger. I've got cancer.

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B*gger. I've got cancer.

Old 1st Jul 2008, 09:13
  #1141 (permalink)  

Bluey
 
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Location: Perth, Western Australia
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I guess you've realised by now that not everyone can be saved, sas ... and it's sad to hear about those who don't make it. It's a bit of a downer for you, and I'm sure there will be more down times ahead before you're finished with this. Take each one as it comes, work your way through it and just keep looking firmly ahead (and keep kicking butt).
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Old 1st Jul 2008, 09:16
  #1142 (permalink)  
 
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SAS

Just found this thread, very very best wishes.

tyke
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Old 1st Jul 2008, 15:54
  #1143 (permalink)  
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Back from the PET scan. I'm faintly glowing due to the radioactive stuff they inject into you.

The results should be available on Thursday afternoon, so hopefully there will be some news then. I'll be on the road down south so if I don't post, it isn't bad news, it's just that I won't have an internet connection.

I sorted out a slight SNAFU. I'm now going in for the Stem cells on the 22nd rather than the 24th and that left it all a bit tight for certain tests to be done. They were trying to organise them for when I'm away, but I got them to give me all the blood bottles and paperwork, which I'll take when I dash into the hospital on Thursday morning.

They wanted to do the blood tests after I'd had the PET scan, but I pointed out that I was getting a radioactive substance stuffed into my blood and maybe that wasn't such a good idea for the tests...............

"Oooh yeah, we hadn't thought of that."
Sometimes I do wonder!
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Old 1st Jul 2008, 19:07
  #1144 (permalink)  
 
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Here I am back from my radio-active iodine therapy, there are some side-effects but nothing too serious really. Not that I can recommend 4 days isolated in a lead-lined room, there was no mobile signal for some reason and the staff strangely reluctant to pop in for a chat or even to tell me that anyone had telephoned asking about me. You're on CCTV so they don't really have to open the door to monitor you.
It's a little dramatic with the capsule contained in a lead pot and after swallowing the capsule I asked how long before it dissolved and started to work. With that they put a 1 metre rule to my stomach and switched on the geiger counter. "There you go, you're officially radio-active. Have fun, see you after the week-end" All goes against my NBC training in the RAF all those years ago, I can tell you
All this I took in my stride but had to have a little strop when my Sunday Times had not appeared by 1.30pm and didn't look like it would either.
Now we wait to see if the cancer cells respond or not and if further doses are required, here's hoping.
I'm not to get any women pregnant for a few months and take care that I don't stand near any pregnant women as frying a foetus is frowned upon, rightly so, of course. My other half sits far enough away when she comes for a chat, well, in the wardrobe actually but that will only last 'till next week. Probably.
Good luck everyone.
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Old 1st Jul 2008, 19:19
  #1145 (permalink)  
 
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Lucky

Wishing you loads of luck here for a good report. Please do let us know how you're doing. I'm glad your side effects were minimal compared to some of the other folks here.

Stay strong!
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Old 1st Jul 2008, 20:53
  #1146 (permalink)  
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Good stuff Lucky. Glad the side effects aren't too bad and here's hoping you'll only need the one dose.

Hmm no mobile reception in a lead lined room......I wonder why!!!!
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Old 1st Jul 2008, 21:08
  #1147 (permalink)  
Psychophysiological entity
 
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One is seeing the belly man tomorrow. Why would he want to see me first? Got big enough endoscope? Patient too ugly for treatment? Lot of work for a delaying tactic.

One is Rivetessless. (not easy to say) She is finding looking after the English littleuns more fun than she'd expected. Better than pushing me out of the door for my appointments.

Seems that my platelets are too big, but it seems that GPs see a lot of this happening these days, so is not too worried. He's just waiting for the film report. It seems that this shows the shape of the disc, so one is hoping for a nice round result. << my platelets
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Old 1st Jul 2008, 21:45
  #1148 (permalink)  
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Good luck tomorrow L_R.
I wouldn't put too much thought into the order you are seen by the Doc's. It's most likely a case of who has a slot free first.
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Old 2nd Jul 2008, 01:12
  #1149 (permalink)  
 
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Hi Lucky, if it is any consolation our cat, Cyril, had the Radio active iodine treatment for his thyroid. Three years later he still rules the neighbourhood in both the feline and canine domains!
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Old 2nd Jul 2008, 05:40
  #1150 (permalink)  
 
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Hi everyone and thank for your kind thoughts I admit to being a bit shell-shocked and can hardly recognise the innocent me just mentioning a lump on my neck back in April. We were visiting my sister in Bahrain at the time and I was protesting at the fuss and disruption of visiting the doctor at the girls insistence. Hey, I'm an old jock from Glasgae toon, just think of the cost for one thing.
So, a fresh appraisal on my part on my chances of making it into my 60's and enjoying what I have now. The uncertainties surrounding the SOB within my body and how it will respond are what I have to deal with and I'm hoping that my mental approach will help as much as the specialists that I've encountered on my short journey to date. Their professionalism is re-assuring tho they've been a bit too gloomy for my liking, certainly, I have no complaints about the NHS and the speed and treatment has been excellent. I'm just thankful that such quality people are happy to dedicate their lives acquiring such expertise to help others
My family, friends and acquaintances have been brilliant and I'll be damned if I'll let myself or them down by succumbing to the SOB. I'm going to be like John's cat, still here, serenely enjoying the neighbourhood in the decade to come.
This smiliy is a good likeness of the scar before the staples were removed. (Massaged daily with Emu oil to reduce it hopefully. Emu oil for goodness sake! Never knew such stuff existed, I hope no Emus were harmed in the making of this product.)
Right, I'm off to get some a nice bit of fish and some cream to follow.
Best of luck to everyone on here and thinking of you, here's hoping that your wishes and dreams come true.
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Old 6th Jul 2008, 18:42
  #1151 (permalink)  
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Good stuff lucky! With an attitude like that, you should give the sod a kicking.

I'm currently sitting at my parents watching the Wimbledon final feeling more relaxed than I have at any time since all this nonsense started.

I arrived in Essex on Friday morning after staying at a friends house on thursday night. I had to leave theirs at 6am to drive into central London to pick my mother and grandmother up. (She's just had cataract surgery that went a bit wrong. The surgeon sorted it out, but it was a close run thing. She spent 3 hours on the operating table under local anaesthetic..........)

I also had to go and get a filling replaced at the dentists. Hmm that was fun. She was drilling for so long I expected oil or lava to gush out at any point.....

Anyway, then off to the sailing club for a couple of drinks. Finally into bed at 4.30am..........

We tried to go sailing the next day, but one look at the wind and choppy conditions and we decided that a hundred year old, open day boat might not be the best thing to go racing in. Especially as it likes to sink every so often. We've stuck bouancy bags in it, but they are just a token gesture really.
So we just spent far too much in the chandlery (otherwise known as the swindelry) and decided to "pimp my boat" with some more fancy carbon blocks. Perfect for a gaff-rigged, clinker built tub.....

"Chemo kidneys" came to the rescue again, though I did have a very mild headache after a night on the sauce, that required a fry up and a couple of pints of water before I felt good enough to get involved in the bar racing that had taken the place of boat racing in the yachtclub.

So all in all a great weekend and just what I needed.

This week is just going to be relaxing and next weekend is going to be a bit of a massive one and I need to build up my strength and wash my drinking trousers.
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Old 7th Jul 2008, 07:02
  #1152 (permalink)  
 
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My sense of taste gone a bit awry, I'm still drinking the beer so that I'll know when it returns to normal
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Old 7th Jul 2008, 10:16
  #1153 (permalink)  
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One thing I noticed still tasted alright no matter what was pear cider or even ordinary cider. Beer often tasted wonky, but don't worry it does come back after a couple of weeks.

Sharp, lemony flavours and hot and spicy food were the best things and tasted the closest to "normal". What went wierd was things like potatoes, bread and other simple flavours.
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Old 7th Jul 2008, 12:23
  #1154 (permalink)  
 
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To SAS,Lucky,Kwachon,Loose Rivets and any others who have posted on this thread who are currently fighting the nasty that is Cancer,

I'll be doing a Cancer Research 10k Run in September, and I just wanted to let you know that I'll be thinking of you all when I'm doing the run, and that the reason I'm doing it is to help fighters like yourselves in the long term.

Its been interesting reading this thread, but its good to see you all fighting and slowly beating it.
Well done to you all for putting up such a strong battle and for taking the time to support each other!
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Old 7th Jul 2008, 19:30
  #1155 (permalink)  
 
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7 months on from very mild radiotherapy, my tastebuds are still ffffff f f funny. Having my parotid (salivary) gland whipped out didn't help.

I can taste most fish, lemon, orange and most bizarrely Cadbury's Twirl bars (all other chocolate is tasteless ) Another odd one is mushrooms - hardly normally known for their rich flavour - they still taste like, well, mushrooms. Spicy stuff just burns, without the flavour as does beer and wine. Had to give away a very fine bottle of Bordeaux, gifted to me last week, because I knew I wouldn't be able to do it justice.

On the plus side, I'm two stone lighter and can get p!$$ed on Tesco's Value lager at 19p a can.
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Old 7th Jul 2008, 20:03
  #1156 (permalink)  
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19p a can. Bonus! If you can't taste it, then that's probably a good thing!
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Old 7th Jul 2008, 20:13
  #1157 (permalink)  
Psychophysiological entity
 
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One is going oooop north tomorrow...nothing personal SAS, but if had 'knowed you were coming etc..

One is intending to see One's brothers number 2 & 3. It's strange for me to say this, cos I grew up as an only child, and searched out my 4 Semi-Siblings after Gill Air went broke in 2001. I've posted this story 'int past, but the gist is that I knew about them, but most of them did not know about me until 2 weeks before I finally found them!

Somebody has done the oil drain plug up too tight in me Son-I-L's car. Split the crank case it did. I found that by easing off the nut the crack would close, and I drilled the plug head and wire locked it airy-plane style so that I can do it up to a mere 10 foot pounds and it not come out.

Ordering J2O Passion fruit drink in the pub is causing me to stand with my hand on my hip while drinking. Needless to say, the locals are looking at me in a funny way.

That's my favorite smiley BTW.

All the best, I'm off to JB, for a bit of therapy
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Old 7th Jul 2008, 20:29
  #1158 (permalink)  
 
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I did have some lemon sweets when in the hospital and, as suggested, thought I should try some more and I knew there was plenty left..... HaHaHa, all gone!, someone ate them all. 5 a day she says, perhaps my OH was confused with the 5 a day fruit thing, they were lemon after all. Some people can resist anything except temptation
Good on you tigger, run your heart out. (I was quite pleased when one of the doctors asked me if I worked out as he was not used to hearing a metronome heart. Obviously all my running years ago was to good effect, I've always said you don't want to go in to hospital if you're not fit.)
FIL insists on donating 2 bottles of red every time he sees me, can't drink it tho, as you say, it burns the throat to much.
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Old 10th Jul 2008, 00:15
  #1159 (permalink)  
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I found the tastebud thing to be the worst part of all of this. I love my food and not being able to taste it, or having it taste off was a miserable experience.

I seemed to become obsessed with cookery shows though! VEry annoying.

Well today I got all my flowing locks chopped off again in preparation for it all falling out in a couple of weeks.

Back to the Dr Evil look, but the main difference is that this time I have eyebrows!
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Old 10th Jul 2008, 00:29
  #1160 (permalink)  
 
Join Date: Dec 2005
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Hey SAS, how you doing mate.

You suit the short hair look - far easier to maintain!

Well Im playing the waiting game again - the problem with my back has spread so affects my neck, so will undergo 2 ops hopefully at same time so one recovery. Got diagnosed with Diabetes and just waiting to see what the scans show about whether I have MS or not - had a low day today, the rain plays havoc with the arthritis.

I am thankful though that my op 18moths ago got rid of my nasty stuff. As they say hold your head up high, shoulders back, smile on your face and deal with each day as it comes. No point worrying about tomorrow when you have today to get through.

I just hope that I get back to a proper sleeping pattern - the morphine should knock me out but it doesnt make me sleepy, so I guess I will see 4am as usual lol

To all of you fighting, keep on with the fight, and know that we are all really proud of how you are coping with it.
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