Hi, sorry for the slow reply,
I have seen a specialist since the initial refusal who has done a review of my case based on all of the material generated from my stay in hospital. He has managed to access this as he works in the hospital I was admitted to. He one of the country's leading experts and also sits on the CAA panel. His opinion is that I did not have encephalitis and have no more chance of another seizure than a normal person.
The CAA initially assessed me as unfit based on about 10% of the information relating to my case. Despite me providing them with the contact details of the consultants involved they made no effort to contact them or request more information from me.
I accept that it is my job to provide them with the information but I had tried to access my medical records through my GP, the few pieces of paper that I received from her, I provided to them. I eventually managed to get hold of all of my medical records which were gathering dust in an archive by asking a friendly medic to get them for me!
I am now in the appeals process which seems to be moving at glacial speed. The original aeromed GP sat on my report for two weeks before deciding to send it to someone else to look at.
Anyone reading this please dont make my mistake and ensure you keep hold of a copy of all of your medical records and do not submit anything to the CAA until you are sure that you have all information relating to your case.
Dealing with NHS and CAA bureacracy is very frustrating...