VFR,
I hope next week comes around soon for you and that it proves to be a positive step forwards. I know you said that you're waiting for info regarding chemotherapy as well so I guess that's still pending?
I can't imagine how stressful it must be for all of you at home. I hope that you are managing to take some time to relax as much as possible and spend some quality time together with your girls.
I am a very strong believer that attitude and state of mind play a huge part in illness and I know it it an easy thing to say but try to stay positive.
I suppose you should just update the CAA when there is something to update them with. The more firm information you can give them, the better opinion they would be able to give you in return. Keep your AME in the loop, I'm sure they would appreciate that and it's another avenue of support for you too.
I hope all goes well for you next week.
Best wishes
B
