Hi,
I'm sorry to read about what's been happening, sounds like you're having a terrible time. I bet it's difficult enough working full time with a family and working towards your flying, without having this as well!
I think for the moment, take one step at a time and you might find it easier to work through in your mind. Firstly, unfortunately you will almost certainly find that your medical will be suspended while you're undergoing investigations. It sounds as though you are having/have had relevant investigations so far so in the first instance it would probably be wise to wait for the results of these.
It goes without saying that being grounded will be frustrating and worrying but unfortunately necessary for safety reasons while you get this sorted (I'm sure you don't need me to tell you that).
Once you have the results, hopefully then you will be in a position to go back to the CAA for assessment and advice on what happens next.
Have you seen a Neurologist yet?
Please do keep us updated.
All the best.
B