PPRuNe Forums - View Single Post - Ulcerative Colitis - advice please!
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Old 18th Jun 2010, 14:55
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pinkpyjama
 
Join Date: Apr 2004
Location: Crawley
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It depends how bad your flare ups are. What it comes down to is not so much the need for the loo but how much and for how long you can hold on for. For most of my flare ups until about a year ago I had little time to hold on, but could always manage until a loo became free. Then things got nasty and went on steroids one final time before going on another course of treatment (Azathioprine) which has been very successful so far.

As I said before try not to panic. Over time you will get a feel for what is good for your symptoms and what to frankly; avoid at all costs.

As for Steroids, only severe flare ups have resulted in me needing to go on them. Symptoms like blood, excessive mucus, significant weight loss, pain and very severe Diarrhoea over a lengthy period. Quite often one can have mini flare ups and for these I haven't resorted to them. Again try not to panic, I know it's easier said than done but this disease is with you to stay and you will soon learn to not only live with it, but to keep on top of things.

I guess in brief, try not to resort to Steroids unless your life is being seriously compromised as a result. Your GP and specialists will know when enough is enough re: steroids. It's not for me to give you a specific time as that would be wrong. I think I have said earlier that they are excellent in halting symptoms very quickly so if your doctors are ok for you to be on them then trust them.

I am a little concerned for you about your company's apparent reservations about you flying. This is nonsense and do not stand for that too much. Obviously if your symptoms are very severe that is another matter, but a huge majority of UC sufferers live perfectly active lives. As long as you feel well and have no prolonged absense from work, then frankly they should let you continue your duties. Keep on top of that one.
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