PPRuNe Forums - View Single Post - Epilepsy - looking for advice in respect of my Daughter
Old 30th Apr 2008, 21:42
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exeng
Mistrust in Management
 
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Gingernut

Thanks for the reply. I really don't think that she had any intention to commit suicide and the fact that she had a full blown fit later on during the day whilst with my Wife would be a remarkable coincidence.

Lancastrian. Again thanks for the reply which seems to contain good advice - we will continue to pursue some or all of the avenues you suggest.

Wetbehindthewings. Thank you, an interesting view which may have some bearing on my Daughter. Certainly my Daughter did have some 'issues' a few years ago which we thought she had mainly put behind her. I have to rely on expert opinion as I am just not qualified in any way (in fact I feel quite ignorant) to make a judgement on the causes of any fit. All I can say is that expert opinion so far has diagnosed the problem to be epilepsy - unfortunately the drugs so far prescribed have failed to produce the desired effect.

Riccardo. Again thanks for the input. In the past surgery was considered but rejected for reasons I'm not entirely sure of now. Certainly a 50/50 chance of survival would be seem to be very poor odds but I'm glad it worked out well for your Cousin.

Mac the Knife. Thanks, I think we will do just as you say and look for a complete re-evaluation of my DAughter's condition.

Homonculus. Thanks for the link to the National Eplepsy Centre.

Out of interest since I have been away on this trip my Daughter has seen her specialist who has changed her prescription; so now we wait to see if the change produces positive results. One of the problems we have found is that it never is immediately apparent whether a particular drug regime is working because it may be some time before my Daughter has a fit.

It seems some patients respond well to drug therapy and some just do not. As parents you are hoping for a 'magic bullet' that will cure the problem; I think it is important for all of us to remain optimistic but we all also have to probably accept that a 'cure' isn't around the corner.

This latest 'incident' frightened us all I have to say, but still I think it is important that my Daughter continues to lead as normal a life as possible.

I'll re-post if there are any other developments.

In the meantime thank you all again for taking the time to offer some insight into this problem


Kind regards
Exeng
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