Danny, Welcome to the KC club! (PPRuNe chapter).
There have been a number of threads covering KC (a couple quite recent). You could search for 'keratoconus' or I'll find some links and post them here.....
Treatment is available these days which seems to be very successful. If you get the chance to get it treated (i.e. stop it progressing) I'd definitely do it.
When I had mine treated back in the eighties I was told it was a "very rare condition" but thanks to the power of the internet, I've discovered quite a number of pilots and ATCOs have this condition...
EDIT: Actually, having just used the Search function, there are a large number of KC related threads, so probably best to check it out that way.
