I hadn’t heard of PSP until my father was diagnosed with it during the pandemic. He had nothing to do with aviation (apart from going on holidays using air travel). His initial deterioration was put down to old age (he was 80 at the time) and was overlooked at the time as more attention was being given to his wife who had dementia and, later, cancer. After her death, his symptoms worsened and he was taken into care. That was three years ago. He can no longer speak, has puréed food and his drinks are thickened to avoid choking. Not much of an existence.