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B*gger. I've got cancer.

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B*gger. I've got cancer.

Old 17th Sep 2017, 14:49
  #3021 (permalink)  
 
Join Date: Dec 2006
Location: Bury St. Edmunds
Age: 59
Posts: 539
Ed thanks for your well- meant words of encouragement I have to tell you they mean a lot, also thanks for the links which I had not read before. My chief concern is whether my consultant will consider me fit enough to begin the PCV course on Tuesday and whether it will do me more good than harm. I feel pretty weak and helpless sometimes and less inclined to man - up to what lies ahead.
MB one part of me sees the tumour rampaging out of control and unstoppable another part tells me the sooner PCV can start the better. MB over
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Old 17th Sep 2017, 15:35
  #3022 (permalink)  
 
Join Date: Dec 2016
Location: Kristiansand
Posts: 28
Originally Posted by Madbob View Post
Ed thanks for your well- meant words of encouragement I have to tell you they mean a lot, also thanks for the links which I had not read before. My chief concern is whether my consultant will consider me fit enough to begin the PCV course on Tuesday and whether it will do me more good than harm. I feel pretty weak and helpless sometimes and less inclined to man - up to what lies ahead.
MB one part of me sees the tumour rampaging out of control and unstoppable another part tells me the sooner PCV can start the better. MB over
Madbob, if your consultant says yes, go for it, or if not, get a second opinion to confirm. It's worth a shot. You're only 57 - that's young nowadays. Beat the bugger!

Have you got close family?
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Old 17th Sep 2017, 16:13
  #3023 (permalink)  
I don't own this space under my name. I should have leased it while I still could
 
Join Date: Dec 2002
Location: Lincolnshire
Age: 76
Posts: 16,610
MB, plan ahead. Have a plan for the future, a holiday in X weeks etc.

Friend of mine was told he would probably die by Easter. He made a plan for survival to August. Sod's law, it is now mid-September and he needs a new plan. We join them week after next for dinner while they have a 3-day Spa break.
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Old 17th Sep 2017, 16:54
  #3024 (permalink)  
 
Join Date: Dec 2006
Location: Bury St. Edmunds
Age: 59
Posts: 539
Annakm,
Thanks for your kind reply. Very happily I am blessed by having a most close and supportive family; my wife Suzanne I have known since I was 13 and we have been married for 32 years and we have two grownup sons who have both been home to visit me in the hospital recently. Likewise so have my brother and sister and the same goes for my wife's sisters and brother so there has been plenty of support. Sady,no daughters-in-law or grandchildren to report, yet!
Thanks again Mad-bob.

Last edited by Madbob; 17th Sep 2017 at 17:51.
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Old 17th Sep 2017, 19:25
  #3025 (permalink)  
 
Join Date: Feb 2015
Location: Cincinnati, Ohio
Posts: 259
MadBob:

Please check your PM's

- Ed
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Old 18th Sep 2017, 11:05
  #3026 (permalink)  
 
Join Date: Aug 2007
Location: Chedburgh, Bury St.Edmunds
Age: 77
Posts: 1,106
MADBOB. We all with you here. Wishing you can join our Survivors Club..
So glad you mentioned your wife, It takes two to fight this disease. Had wonderful support from mine. Got me through it seven years ago.
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Old 11th Oct 2017, 18:06
  #3027 (permalink)  
 
Join Date: May 2008
Location: Scotland
Age: 75
Posts: 452
Just had some good news from my oncologist the 3 hormone treatments have been very effective,no need to see him until July next year and does not expect that I will need more treatment for a year or two.
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Old 15th Oct 2017, 21:47
  #3028 (permalink)  
 
Join Date: Dec 2006
Location: Bury St. Edmunds
Age: 59
Posts: 539
Jem60 many many thanks for your encouraging reply to need you and right now as two of us he drugs I am on hav suzanne de effects that can make me ne f the l depressed which was s comes petrel all en to me as normally someone me whose gall I always s half full ann never half empty! I’m also am first in line and only he bar! Even if it’s the “last chance saloon”

Last edited by Madbob; 15th Oct 2017 at 21:49. Reason: Correcting typos
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Old 5th Nov 2017, 23:58
  #3029 (permalink)  
Thread Starter
 
Join Date: Mar 2000
Location: U.K.
Age: 41
Posts: 3,112
Hi MB et al,

Sorry for the very belated response, for some reason I don't get alerted to updates on the thread anymore and so had no idea people were still posting on it!

Well, it doesn't sound like fun MB, but this sort of thing never is.

However, you have a strong support team and you are still kicking, so anything is possible.

I had a good friend who had a nasty glioma and was told in no uncertain terms that he was unlikely to get through. This was 7 years ago and he's still annoying the hell out of me...

So, all the best to you and to everyone else on your team helping you through it.
Say again s l o w l y is offline  
Old 3rd Feb 2018, 13:04
  #3030 (permalink)  
 
Join Date: Mar 2009
Location: SW England
Age: 72
Posts: 3,761
Just a bit of cheery news for fellow sufferers and ex-sufferers. Had my annual cystoscopy a couple of days ago, and once again all was clear. That makes coming up to 13 years clear post bladder cancer.
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Old 3rd Feb 2018, 13:24
  #3031 (permalink)  
 
Join Date: Jul 2006
Location: South of Old Warden
Age: 82
Posts: 1,380
I had a cancer scare last year, it turned out to be false. Having survived one bout of it, it was an immense relief. I can empathise with how you must feel, TTN.
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Old 3rd Feb 2018, 19:10
  #3032 (permalink)  
 
Join Date: Aug 2007
Location: Near the watter...
Age: 73
Posts: 251
Haven't posted here for a while..was diagnosed with prostate cancer back in 2007. By now I've had hormone injections and bicalutamide, intensity modulated radio therapy, a trans urethral resection of the prostate, then a gap of 5 years or so without treatment as the PSA had dropped down to 0.12. Over the years it slowly crept up... Back in 2016 it started to go up faster and soon it had got to 23 and I was back on the hormones, Zoladex implants and bicalutamide....this brought the PSA down to 7.5. I was still asymptomatic.
Then it was suggested that early chemo had proved more beneficial than leaving it to the charmingly named "end stage"...so I went for it, through the winter of 2016/17. Six cycles of chemo... the remains of the hair fell out....and the PSA was up and down like a mad thing. Once the chemo had finished, no stability...PSA kept on rising...20... 30..... and last measure was 49 a few weeks ago.
Now I'm on Enzalutamide, one of the two "new" drugs....the other being Abiraterone.... both are hormone type things. Sadly, the tumour has metastasized and got into the bones and the lymph glands, and recent scans show "PROGRESSION" which is medicalese for "getting worse". I have significant aches and pains from bits of the skeleton and my left kidney is being obstructed by the growth on one of the lymph nodes; so things aren't good...
However, back at diagnosis, I was told I could be dead inside a year, and that was over 11 years ago now...so no complaints from me. The Royal Marsden has pulled out all the stops and I'm still here and still pressing on regardless. By the end of the month, we shall know if the Enzalutamide is doing it's stuff...if not, then there remains Abiraterone to try, but it's getting down to the last chance saloon. I'm only here at all because of heroic surgery after my appendix burst in my 7th year, seems I had about half an hour left....since then, it's all been bunce and I've made it to the Biblical "Three score years and ten", when I had expected to be a smoking hole in the ground before reaching 40. Hooray for the NHS!!!
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Old 9th Apr 2018, 23:07
  #3033 (permalink)  
 
Join Date: May 2004
Location: Москва/Ташкент
Age: 49
Posts: 783
Just heard that one in fourteen men get bowel cancer..... that is a scary statistic.

At 48 decided to be tested... preventative measure... just a simple test of wiping some poo on a swab... and sending it away.

Will say that after hearing a number of high profile bowel cancer cases in the UK media, and how they (mostly men) wished they were tested before preventively I'd urge anyone in their forties plus to get this test done - I believe is free on the NHS in then UK and could literally save your life.

Don't hesitate chaps.
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Old 10th Apr 2018, 02:02
  #3034 (permalink)  
 
Join Date: Mar 2002
Location: Florida
Posts: 5,168
Just heard that one in fourteen men get bowel cancer..... that is a scary statistic.

At 48 decided to be tested... preventative measure... just a simple test of wiping some poo on a swab... and sending it away.

Will say that after hearing a number of high profile bowel cancer cases in the UK media, and how they (mostly men) wished they were tested before preventively I'd urge anyone in their forties plus to get this test done - I believe is free on the NHS in then UK and could literally save your life.

Don't hesitate chaps.
Over here most doc push for colonoscopy at age 50 and every 5-10 years after.

I tend to feel the poo test is like the men's PSA test, not enough by itself. However bowel cancer is a lot more aggressive and the tests need to combat this
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Old 10th Apr 2018, 08:03
  #3035 (permalink)  
Está servira para distraerle.
 
Join Date: Jan 2002
Location: In a perambulator.
Posts: 2
In South Africa most doctors I know, as in the States, recommend a base line colonoscopy at fifty. Can't see why not either as long as it's not done by a registrar who can't speak English at all. That's what happened to my dearest one in an NHS hospital in the UK before a surgeon walked in and asked the surgeon if she'd like him to take over. He was then able to teach her how to conduct the procedure both efficiently and with safety for the patient.
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Old 10th Apr 2018, 11:31
  #3036 (permalink)  
I don't own this space under my name. I should have leased it while I still could
 
Join Date: Dec 2002
Location: Lincolnshire
Age: 76
Posts: 16,610
flash8 et al, I had regular poo checks, all negative. My first sign was visible blood in the stool around September. No panic, probably just a random bleed.

December explosive event and no doubt what every. It seemed to quieten down for a few days before resuming small visible blood. Colonoscopies in January and operation in February and now one year on an clear.

The point is that onset to stage 1 was very rapid. Had I only had small traces of blood I would probably have ignored it.

Bottom line () and signs, don't delay.
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