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B*gger. I've got cancer.

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B*gger. I've got cancer.

Old 10th Oct 2015, 16:17
  #2821 (permalink)  
 
Join Date: Aug 2009
Location: Florida
Age: 67
Posts: 32
Hang in there Keef. All your friends are rooting for you-and YES you are worth it
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Old 10th Oct 2015, 16:29
  #2822 (permalink)  
 
Join Date: Mar 2005
Location: America's 51st State
Posts: 186
Good luck Keef - I really hope you get that pill!

It's easy to see from the previous postings that you have a lot of support from all over the world in your battle so it's clear that you're worth it!!

Regards.

VH-MLE
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Old 10th Oct 2015, 22:13
  #2823 (permalink)  
 
Join Date: Aug 2007
Location: London, New York, Paris, Moscow.
Posts: 3,633
O/T not C

Originally Posted by BWSBoy6 View Post
. It makes me furious that these drugs are available and that someone's looking at cost!

Mrs Bws
I've had the same here in Tayside, not cancer, inherited/genetic heart disease FL; was on drug A taken off that due to Tayside NHS accountants, Put on a mixture of statins completely screwed up my joints in lower limbs, only by arguing was able to get onto a dose/mix that allowed me to work.
Drug A totally transformed ldl/hdl into correct ratios and took cholesterol to 2.8 not bad for a weegie...
Now I'm told my cholesterol and blood pressures are within "parameters" almost lip service, I'm not blaming my gp he's only doing what he's been told, straight from the horses mouth as they say...

Best wishes to us all, we're getting on these days.

gr.
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Old 12th Oct 2015, 22:07
  #2824 (permalink)  
 
Join Date: Nov 2007
Location: New Zealand
Age: 72
Posts: 508
Blood test results received today with a PSA reading of 0.1 which is very satisfactory.

The drug I have every six months to keep the PSA down is Eligard and costs about $1K here which fortunately is fully funded by our public health system.
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Old 13th Oct 2015, 04:44
  #2825 (permalink)  
 
Join Date: Jun 2007
Location: Marion, South Australia
Age: 76
Posts: 183
Great results John Hill.
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Old 13th Oct 2015, 20:48
  #2826 (permalink)  
 
Join Date: Nov 2013
Location: Under a gooseberry bush
Posts: 50
Excellent news John, really pleased to hear. Always a relief to get that magic number. 😊

I thought of you today because I remember you mentioning this same issue. A friend asked Mr B how he was feeling after his RT and he mentioned that although he's fine in himself, he certainly feels like he's lost some of his strength. He was always naturally quite fit before but at the moment he's experiencing a lack of stamina. I'm sure this is as a result of quite a lot of his 'good' cells being knocked out by the RT too and that his body needs time to recover and rebuild them.

Mrs B
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Old 14th Oct 2015, 16:49
  #2827 (permalink)  
 
Join Date: Feb 2008
Location: Southwold
Age: 67
Posts: 58
Being reported that John Hurt is clear of pancreatic cancer. Remarkable if true.
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Old 14th Oct 2015, 20:10
  #2828 (permalink)  
 
Join Date: May 2008
Location: Scotland
Age: 75
Posts: 451
Saw my oncologist today after my 6 month waiting period.PSA test showed 5.2 - same as 6 months ago. No action to be taken at this time - go back again in 6 months. This is about as good as I hoped.
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Old 15th Oct 2015, 11:22
  #2829 (permalink)  
 
Join Date: May 2009
Location: Search me - I only just got out of bed ....
Age: 74
Posts: 457
I saw my urologist yesterday for the six month post implant checkup. He was very pleased with the latest PSA reading (.59). The expectation is that it should now stay below 1.0 from here on. So it's PSA tests every six months, and schedule another consultation in twelve months - earlier if the six monthly PSA reading is cause for concern.

So twelve months after the original diagnosis, I am relieved and thankful at the way this has all turned out. Your stories have been a source of very helpful information and ongoing encouragement for me. I hope and pray for a good outcome for all of the others in this thread who are working through this problem.

Thank you all.

FOR
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Old 15th Oct 2015, 22:04
  #2830 (permalink)  
 
Join Date: Jun 2007
Location: Marion, South Australia
Age: 76
Posts: 183
Great news FOR, great news indeed.


Mike
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Old 15th Oct 2015, 22:25
  #2831 (permalink)  
 
Join Date: Mar 2009
Location: SW England
Age: 72
Posts: 3,711
It's a long time since I posted on here, and the reason is that if lung cancer is premier league, then early stage bladder cancer is Vauxhall Conference (if that still exists!). Anyway, by the time I knew I had it, they had whipped it out, and a few month's worth of chemo and radiotherapy seems to have blasted it out of existence - it's as though I never had cancer, and I feel I'm not really entitled to be in the company of many who have really suffered.

Anyway that was 11 years ago and I've just been along for my annual cystoscopy. I have to admit that the experience of an attractive young nurse inserting a tube with a camera on the end in my old chap while we chatted about the problems and pleasures of keeping pigs was a surreal one! Anyway I was in and out in 10 minutes with an "all clear" for another year.

My very best wishes to all who are having a bad time, and please get better Keef - we need you to carry on injecting a note of sanity into so many threads on here!
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Old 12th Nov 2015, 16:46
  #2832 (permalink)  
 
Join Date: Nov 2013
Location: Under a gooseberry bush
Posts: 50
Firstly, any news Keef? Still thinking about you and please keep us posted.

Secondly, happy to report Mr B's PSA test (Post HDR Brachy in late August) is today at 0.64. Original figure at diagnosis was 46.0 so quite a satisfying result. Follow up appointment at hospital next week so it will be interesting to see what they consider the long term outlook is. Not sure what the general success rate of HDR is so fingers crossed.

Mrs Bws.
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Old 12th Nov 2015, 21:51
  #2833 (permalink)  
 
Join Date: May 2009
Location: Search me - I only just got out of bed ....
Age: 74
Posts: 457
Secondly, happy to report Mr B's PSA test (Post HDR Brachy in late August) is today at 0.64.
That's a very encouraging result . Wonderful news, which I would expect to be affirmed at the hospital visit next week.

FOR
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Old 13th Nov 2015, 08:56
  #2834 (permalink)  
 
Join Date: Jul 2002
Location: The sarf coast
Posts: 47
Not been on here for a while but have been watching closely.

First I hope Keef got the treatment he needs, bl**dy accountants......

Second, great news on Mr B, cannot imagine the relief being felt all round.

Now inside the last week before my own HDR, due on 20 Nov in Southampton.

Don't know if I am scared or just really not looking forward to spending the best part of a day on my back with various bits inserted in me under an epidural

Think I would have preferred being out of it with seed brachy but calcification in the prostate put paid to that!!

I think my plan is to not sleep all week and then catch up all day Friday

I look forward to passing on equally postive news, a la Mrs B, in the not too distant future.

Last edited by short&shapeless; 13th Nov 2015 at 08:58. Reason: Mi eggzelent speeling
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Old 13th Nov 2015, 12:19
  #2835 (permalink)  
 
Join Date: Nov 2013
Location: Under a gooseberry bush
Posts: 50
Second, great news on Mr B, cannot imagine the relief being felt all round.

Now inside the last week before my own HDR, due on 20 Nov in Southampton.

Don't know if I am scared or just really not looking forward to spending the best part of a day on my back with various bits inserted in me under an epidural

Think I would have preferred being out of it with seed brachy but calcification in the prostate put paid to that!!

I think my plan is to not sleep all week and then catch up all day Friday

I look forward to passing on equally postive news, a la Mrs B, in the not too distant future.[/QUOTE]

Hi S&S! Mr B's HDR was done in Southampton too and I've nothing but praise for them. Very professional but caring, sensitive and thoughtful to the individual
as well. You'll be in good hands. Just out of interest, will your Brachy be followed up by external RT too?
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Old 13th Nov 2015, 13:43
  #2836 (permalink)  
 
Join Date: Jul 2002
Location: The sarf coast
Posts: 47
Not for me, well as things stand anyway.

Plan is the hormones and single HDR dose should be enough, fingers crossed.

A week today
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Old 13th Nov 2015, 20:32
  #2837 (permalink)  
 
Join Date: Jun 2007
Location: Marion, South Australia
Age: 76
Posts: 183
shortandshapeless,


You'll be right - keep positive.


Mike
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Old 13th Nov 2015, 22:08
  #2838 (permalink)  
 
Join Date: Aug 2007
Location: London, New York, Paris, Moscow.
Posts: 3,633
@ short&shapeless

positive energy bro, think it!!!
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Old 19th Nov 2015, 21:36
  #2839 (permalink)  
 
Join Date: Nov 2013
Location: Under a gooseberry bush
Posts: 50
All the best for tomorrow short&shapeless. Just to keep you positive, Mr B had his post Brachy follow up appointment on Tuesday. The oncologist said, as far as she was concerned, she was extremely confident that they had successfully treated and got all the PCa. Quite a statement. She recommended that Mr B stay on the Zoladex for another year and to think of the hormone treatment more as an insurance policy in case any minuscule cells had escaped. There will be follow up PSA tests for the next few years just to monitor, but hopefully a result.

A days treatment you will be pleased to get behind you but with every chance of a pleasing result. Keep us posted.

Mrs Bws
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Old 19th Nov 2015, 22:17
  #2840 (permalink)  
 
Join Date: Oct 2009
Location: North West UK
Posts: 519
Not me Thank God

Got a call from a long standing client about three weeks ago. Lovely guy aged about 40 with wife and four boys aged 12, 10 and twins of four. Hadn't heard from him for a short while. Sounded awful, told me he was dying of cancer. Had little time and wanted to get everything ready so his widow need not worry; so wanted me go prepare a probate valuation of his property portfolio. Started to make plans to do the job and got a call today. He died this morning less than three weeks after he rang me.

So sad. Young, wife, kids but also and perhaps more importantly, a totally genuine guy. No messing, just honest, straight, kind, generous and easy to deal with. Too many people are looking to cut corners. He didn't but his life was cut short instead. At least he goes with 'good name'. You can't that away from people.
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