View Full Version : B*gger. I've got cancer.

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Say again s l o w l y
15th Jul 2010, 14:50
For a start, the tube that is in his chest is likely to be a Hickman line like this;


It is attached into a major artery, rather than directly to the tumours themselves.

I have no knowledge of this particular treatment or disease, but cancer care is moving on at an incredible rate, so someone who was treated even a couple of years ago might have undergone a completely different treatment than patients do today. If he's had few side effects, then that is fantastic!

15th Jul 2010, 15:05
Thank you for that. It looks similar except that R (my friend) has a definite cut in his chest, same location as on the check shirt victim provided so kindly by you. I don't think his line goes in to a vein but I could have got that wrong. I'll be seeing him tomorrow and will engage further in detailed medical conversation.No, no side effects at all that I can see or that he can describe. As for the colostomy bag, I have to say that if he were not still a bit of a rogue, I think he would find life easier with it than without it.
I appreciate your posting, thank you. As for me on this thread well, in the last eight months, one kidney excised with 3cm TCC which was missed on two UK CT scans. One skin cancer sorted, that was the bald patch and now a PSA of 6.91 so as you may imagine, life has its little thrills.
Oceanz-that should surely only be for the first year? Then it is every six months and then annually? But I agree, no fun at all.

Say again s l o w l y
15th Jul 2010, 15:48
The checked shirted victim is me! Here's another slightly more graphic picture that shows what it looks like when it's just put in. There is a lot of cutting that goes on! The end of those tubes went directly in the aorta. So it delivers the chemo directly into the main part of the circulatory system. It is put in using x-rays or ultrasound and it is not a particularly pleasant experience.


I had to have 3 put in and I now have a nice variety of scars across my chest and shoulders, however they make the business of receiving chemo a far better prospect than using standard temporary venflons.

15th Jul 2010, 16:40
I guessed it were you. Have to say that it looks like a butcher shop compared to my chums'. However, there is stuff and stuff and comparisons are invidious.
Still, I bet that got the chemotherapy straight to the source of the problem. It does however look extremely unpleasant. I think you are much better now, which is great. I remember when you started this thread. I wonder if you ever read back through it, all shivery stuff some of it. The thread has been a brilliant addition to PPrune and many congratulations.

Say again s l o w l y
15th Jul 2010, 16:47
Thanks. I certainly found it a very cathartic thread and the support I received from everyone on here was something that I'll never forget. It helped me keep my sanity and the it showed what a good bunch the majority of Ppruners really are.

The reason I do not think that it is a direct link to the tumour is that there is a lot of things in the way before a tube from the shoulder area reaches the gut. Chemo is also something that is plonked into the blood supply to be taken up by the tumour and kill it from within as it ingests what it needs from the blood. The chemo goes along for the ride and gets into the tumour in that way. Chemo is never put directly into tissue. It can kill if that happens.

15th Jul 2010, 17:37
Well, I jokingly asked R the other day what would happen if he turned the tap up a bit and he said he'd drop dead. I will report back when I know more. I did wonder how a tube could be filtered through or around all the organs in between breast bone and bowel. But his cut is on his right so the chemical cannot be passing in through the aorta.
I think you're thread has been of great help to many people. If you've tried to Google different cancers, and I'm sure you have, you will know how utterly disastrous and depressing can be so much of the verbiage out there. Some of the hospital links are excellent of course, the MD Anderson Hospital for example. Not too sure about the Marsden but then again, I guess that is the best cancer hospital in England? It is quite useful in many ways to be able to read about the unpleasantness of the disease as experienced by intelligent and articulate people. Interesting too that different countries have different protocols for the same type of cancer. So long as it goes away and stays away!

Loose rivets
18th Jul 2010, 23:03
Never know what to think of these things, but having seen the affects of curcumin on a bad Parkinson's patient, I'd never completely deny these 'cures.'

(Have I witnessed a miracle? in the medical forum a few years ago. I'd waited 6 months before posting, just in case.)

Back to cancer.

Not exactly an amateur.

My Mom had been taking the full-stalk canned style
asparagus that she pureed and she took 4 tablespoons in
the morning and 4 tablespoons later in the day. She did
this for over a month. She is on chemo pills for Stage 3
lung cancer in the pleural area and her cancer cell
count went from 386 down to 125 as of this past week.
Her oncologist said she does not need to see him for 3

Several years ago, I had a man seeking asparagus for a
friend who had cancer. He gave me a photocopied copy
of an article, entitled, Asparagus for cancer 'printed in
Cancer News Journal, December 1979. I will share it
here, just as it was shared with me: I am a
biochemist, and have specialized in the relation of diet
to health or over 50 years. Several years ago, I learned
of the discovery of Richard R. Vensal, D.D.S. that
asparagus might cure cancer. Since then, I have worked
with him on his project We have accumulated a number
of favorable case histories. Here are a few examples:

Case No. 1, A man with an almost hopeless case
of Hodgkin's disease (cancer of the lymph glands) who
was completely incapacitated. Within 1 year of starting
the asparagus therapy, his doctors were unable to
detect any signs of cancer, and he was back on a
schedule of strenuous exercise.
Case No. 2, a successful businessman 68 years old
who suffered from cancer of the bladder for 16 years.
After years of medical treatments, including radiation
without improvement, he went on asparagus. Within 3
months, examinations revealed that his bladder tumor
had disappeared and that his kidneys were normal.

Case No. 3, a man who had lung cancer. On March 5th 1971, he
was put on the operating table where they found
lung cancer so widely spread that it was inoperable.
The surgeon sewed him up and declared his case
hopeless. On April 5th he heard about the Asparagus
therapy and immediately started taking it By August,
x-ray pictures revealed that all signs of the cancer had
He is back at his regular business routine.

Case No. 4, a woman who was troubled for a number of
years with skin cancer. She finally developed different
skin cancers which were diagnosed by the acting
specialist as advanced. Within 3 months after starting
on asparagus, her skin specialist said that her skin
looked fine and no more skin lesions. This woman
reported that the asparagus therapy also cured her
kidney disease, which started in 1949. She had over 10
operations for kidney stones, and was receiving
government disability payments for an inoperable,
terminal, kidney condition. She attributes the cure of
this kidney trouble entirely to the asparagus.

I was not surprised at this result, as `The elements of
materia medica', edited in1854 by a Professor at the
University of Pennsylvania , stated that asparagus was
used as a popular remedy for kidney stones. He even
referred to experiments, in 1739, on the power of
asparagus in dissolving stones. Note the dates!
We would have other case histories but the medical
establishment has interfered with our obtaining some
of the records. I am therefore appealing to readers to
spread this good news and help us to gather a large
number of case histories that will overwhelm the
medical skeptics about this unbelievably simple and
natural remedy.

For the treatment, asparagus should be cooked
before using, and therefore canned asparagus is just
as good as fresh. I have corresponded with the two
leading canners of asparagus, Giant and Stokely, and I
am satisfied that these brands contain no pesticides or
Place the cooked asparagus in a blender and liquefy to
make a puree, and store in the refrigerator. Give the
patient 4 full tablespoons twice daily, morning and
evening. Patients usually show some improvement in
2-4 weeks. It can be diluted with water and used as a
cold or hot drink. This suggested dosage is based on
present experience, but certainly larger amounts can do
no harm and may be needed in some cases. As a
biochemist I am convinced of the old saying that `what
cures can prevent.' Based on this theory, my wife and I
have been using asparagus puree as a beverage with
our meals. We take 2 tablespoons diluted in water to
suit our taste with breakfast and with dinner. I take
mine hot and my wife prefers hers cold. For years we
have made it a practice to have blood surveys taken as
part of our regular checkups. The last blood survey,
taken by a medical doctor who specializes in the
nutritional approach to health, showed substantial
improvements in all categories over the last one, and
we can attribute these improvements to nothing but
the asparagus drink.
As a biochemist, I have made an extensive study of all
aspects of cancer, and all of the proposed cures. As a
result, I am convinced that asparagus fits in better
with the latest theories about cancer.

Asparagus contains a good supply of protein called
histones, which are believed to be active in controlling
cell growth.. For that reason, I believe asparagus can
be said to contain a substance that I call cell growth
normalizer. That accounts for its action on cancer and
in acting as a general body tonic. In any event,
regardless of theory, asparagus used as we suggest, is
a harmless substance. The FDA cannot prevent you
from using it and it may do you much good. It has
been reported by the US National Cancer Institute, that
asparagus is the highest tested food containing
glutathione, which is considered one of the body's
most potent anticarcinogens and antioxidants.

19th Jul 2010, 10:20
SaS - Have you heard back from Kwachon??

I was out of the loop for a while for a quintuple bypass (didn't know they went above four!). Still on a three day week, but what the heck!

Cheers to all.

Say again s l o w l y
19th Jul 2010, 15:41
Oh blimey angels, I hope you're firing on all cylinders again now though!

I have e-mailed KW and when I get a response I'll let everyone know.

How about a roundup from everyone. Luckyb, front and centre!

22nd Jul 2010, 09:58
Aged 50.5 I thought a PSA test would be a good idea. Didn't get told the result so assumed (silly boy ..) that all was well. Went to see doc (pretty one this time, not the fat pompous male one) five months later about my sore foot who saw the 4.8 number and suggested another test - 6.0.

In I go for the ten needles up the back entrance, and back comes the score - Gleason 7 (4+3), nine of the ten biopsies have Ca, with an average of 65% of the cells surveyed being naughty ones.

So it's cut it out or zap it, it seems. My preference is for brachytherapy (seeds of radioactive stuff shot into the prostate) but first I have to have an MRI to ensure there are no secondaries. That's on Tuesday next week.

Looks like it could have become quite aggressive quite soon (five or so years) if not found - and it was entirely my idea to have the PSA checked, which I'm quite proud of.

22nd Jul 2010, 10:20
airborne - sorry to hear the news mate, but hats off for getting the check done in the first place and (although I'm no expert) it seems everything has been caught in time. Best of luck with MRI, my wife had one recently and said the music is crap!

Also, you've persuaded me to get one done myself!

26th Jul 2010, 21:13
And it's bugger from me too.

I was diagnosed with Non Small Cell Lung Cancer (Adenocarcinoma) on 25th June, Stage IV, with mets to lymph nodes in right lung and right hand side of neck.
I was initially offered chemotherapy to add a few months to my life expectancy, but now this is doubtful as I has a setback two weeks ago when a clot shot to my good (left) lung and almost finished me off!

I've recovered from that now and I'm battling to regain strength so the consultant will try the chemo. I won't give up with out a fight. I could do a lot if I could have a few extra months.

It only seems a few months since Sassy started this thread. I remember I was worried about renewing my IR at the time! How life changes.

I'm really glad I kept reading the thread because it shows determination will keep you going, even if for a bit longer.

For the record I'm 42 and smoked cigarettes since the age of 16. I was warned.

Thanks for all the advice that has been given on this topic.

27th Jul 2010, 11:26
Airborne Artist

Looks like I get to join, at last ...
Aged 50.5 I thought a PSA test would be a good idea. Didn't get told the result so assumed (silly boy ..) that all was well. Went to see doc (pretty one this time, not the fat pompous male one) five months later about my sore foot who saw the 4.8 number and suggested another test - 6.0.

In I go for the ten needles up the back entrance, and back comes the score - Gleason 7 (4+3), nine of the ten biopsies have Ca, with an average of 65% of the cells surveyed being naughty ones.

So it's cut it out or zap it, it seems. My preference is for brachytherapy (seeds of radioactive stuff shot into the prostate) but first I have to have an MRI to ensure there are no secondaries. That's on Tuesday next week.

Looks like it could have become quite aggressive quite soon (five or so years) if not found - and it was entirely my idea to have the PSA checked, which I'm quite proud of.

As I was leaving Hospital after my Radical Prostatectomy in April 2009, the Nurse with me said her husband had the Brachytherapy Procedure about 7 years prior. The Prostate Ca has apparently returned and as I understand it, a Radical Prostatectomy cannot be offered because of 'scarring' of the Prostate arising from the Brachytherapy Radio Active Seeds.

A very good website for men with prostate conditions. My story is at PSA 5.4.

Prostate Cancer Survivors - PSA between 5 and 10 at Diagnosis (http://www.yananow.net/Chart-PSA.htm)



27th Jul 2010, 13:51
I've posted in this thread before...but, to recap, I was diagnosed with prostate cancer at the beginning of 2007; initial PSA was 26. The biopsy and further investigation showed T3a Gleason 9....not good. Since then I have had hormone therapy by 12 weekly Zoladex implants..a daily Bicalutamide pill..Intensity Modulated Radio Therapy (I'm part of the Royal Marsden trial, and am apparently the World's Most Irradiated Man) and, to cap it all, had a Trans Urethral Resection last September. I now exhibit no symptoms at all and my PSA is 0.17 as I found from my last howgozit at the Marsden yesterday....that took about five minutes and I go back again in January.

One can never be completely confident, but I am beginning to get quite optimistic! Just hope things continue as they are....

Alok Singh
27th Jul 2010, 16:56
Don't ever give up. It is all a mind game. You give up you loose. I believe asparagus may be very useful. I am sure we will still be sending messages years from now. Take care and have faith. God bless.

Say again s l o w l y
27th Jul 2010, 17:54
F3, all the very best from me. Give it your best shot, that's all you can do. We'll all be cheering you along from the sidelines. If you want to chat about anything, send me a message, I'll get back to you asap.

It's funny how it goes. Just a few months before I was diagnosed I was chatting to a certain bloke in the clubhouse in Perth. He was telling me about his battle with lymphoma and I was sat there thinking "Jeez, poor bloke, what a thing to have been through" not that he wanted or needed my sympathy of course.
That bloke turned out to be floppylink of this 'ere parish. Little was I to know that it would be my turn next.

Hopefully this thread has turned into something more than simply a way of letting my frustrations out and that others have got something from it, even if it's just a sense that you aren't alone as people have their own fights. I know how important the support I received on here was to me.

It's nearly 3 years since I started this thread... Blimey. Feels like yesterday.

27th Jul 2010, 20:06
Big thoughts and best wishes F3, take no prisoners...ditto what SAS said, if there's anything at all I can do...

27th Jul 2010, 23:03
Many thanks for the messages of support guys. True PPRuNe spirit.

I'm not going to obsess with life expectancy, rather concentrate on trying to feel stronger each day, particularly as this is still possible at this stage after spending two weeks in a hospital bed getting my breath back.

Last Tuesday I could just about walk three feet from my desk to bed (all downstairs now) on Oxygen at 4l/min. I can make it to the kitchen now and wash and dress myself and make my own food, without Oxygen, so things have improved.

My goal for the end of the week is to make to the pax seat in my old Mercedes as I believe the sound of a 30 year old V8 is food for the soul! ;)
Alas, my brother will have to drive.

I've always enjoyed Loose-Rivets thoughts on various health topics and I showed one of my friends his write up on Asparagus. Within half an hour he bought back a plate full and steamed it, so you never know. It was quite nice with a bit of butter. Nicer than the Alimpta/Cisplatin chemo I'm holding out for, I'd wager!

It's amazing how one realizes life is so precious and is such a huge privilege.
I can see how people who come through the other side of disease view life so very differently. I wish I'd realized this before. Still, each day is a gift now. :)

Thank you again.

DX Wombat
27th Jul 2010, 23:09
A quick word of explanation of the reason for using large blood vessels for siting cannulae. The drugs used in chemotherapy are often quite irritant to the walls of blood vessels which can rupture and allow the irritant fluid to escape into the surrounding soft tissue causing more pain and irritation and slower absorption of the drug. By placing a cannula into a large blood vessel a better ratio of infused drug to volume of blood flow is obtained resulting in minimal, if any, local irritation and better absorption of the drug. The deeply situated cannula is also better as it is not subject to frequent changes of location. Hope that makes sense, if it doesn't, please let me know and I'll try again.

Say again s l o w l y
28th Jul 2010, 00:57
F3, it's a 450slc isn't it? I remember that from a thread a couple of years ago. Lovely!

Hopefully you'll continue to recover your breath back as quickly as possible. We can't have you missing out on a bit of petrol therapy! Dr. SAS thinks that it should be available to all on the NHS...

I helped organise a supercar run to Headley Court comprised of Ferrari's, Lambo's, TVR's, Porsche's etc.etc. and it was amazing what an effect a beautiful car can have on a bloke in hospital. Brought tears to my eyes that! I couldn't even be there as I was still getting chemo at the time and the Doc told me to naff off when I asked if it'd be alright to go down for it, but the e-mails, letters and photo's told the whole tale. Anything that brings a smile to your face is worth it and helps you recover in some small way.
So fire up that engine and go for a cruise. It'll be well worth it!

DX, spot on, as per usual.

28th Jul 2010, 01:28
Having lost and uncle to cancer a few months ago, I stand in awe of you all telling your stories as they go. Why am I posting when all I have had wrong with me in the past few months is a dislocated a/c joint and broken humerous? I thought I would let you in on this....

My dad went in for a checkup as he was feeling rather lethargic, the doctor sent him in for a barrage of tests not wanting to take any chances, given he has suffered angina and had a mild heart attack 20 years ago. He went in for an angioplasty where the doctors quickly stopped the procedure and said, "Right Mate, we're wheeling you in next door right now, we're gonna give you two new valves." "Like ****," says he, much to the families disgust.

After some chatting about it he wanted 'things in order' (maybe a huge porn collection I don't know about?) before the operation and went in two weeks later. The operation lasted somewhat longer than anticipated, as he ended up having a quadruple bypass.

He came out of hospital some days later and his brother with the brain cancer (as mentioned above) passed away and dad's his recovery slowed and he ended up back in hospital.

I told you all that to tell you this...
Take each day with both hands (by the balls if you can), rid yourself of negative thoughts, and set those goals and get at them! I admire all your positivity SAS, F3, Airborne Artist at al, and I can say that without doubt, a positive mind has a positive effect on the body.

Best of luck gentlemen, PPruNers await your updates - our thoughts are with you!

2nd Aug 2010, 19:16
I just found out that a dear friend of mine in London finally succumbed to cancer today.

She had been battling for years, recovering only to have relapses years down the line, starting in her thirties, now in her mid forties.

She was always cheerful, even in the most trying times, and will be missed.

The hardest part to reconcile, is seeing her in between the periods where she had recovered and the sense of hope that it is/was over. I have lost others to this dreaded desease, though somehow, in this instance, it has caught me off guard.

Sorry for hijacking the thread; I had to get it off my chest, hopefully with others, who understand.

Loose rivets
6th Aug 2010, 06:04
Hi everybody. There's a Prostate Specific thread on the medical section at the moment. Some good links and professional input - erm, plus me.

Again I would point out that I'm largely shutting my mind to the problem, so don't talk about it much. However, I do like to say that if my Brachytherapy does save my bacon, then it really is nothing to be concerned about, and folk shouldn't worry about the biopsy or the treatment.

All the best.


18th Aug 2010, 20:19
here I am chaps, alive and kicking! I'm still on the Hope medical trial at the Royal Marsden and the lovely people there are keeping me going. Unfortunately I had an infection and had to stop the trial for 4 weeks which resulted in the cancers growing again, fortunately they took the view that I could continue with the trial, a marginal decision apparently. Whew, the relief from me, I can tell you.

I've spent the last 3+ weeks driving down to Italy and back to see some of my old chums at the pre-worlds Hang Gliding champs. I've had great fun punting my N400 Vantage hard where-ever possible on some of the best roads.:} (The best birthday present ever from myself.)

Loose rivets
18th Aug 2010, 22:06
Coo...That sounds like fun, and there's only 479 other ones about.

Be Lucky. :ok:

Say again s l o w l y
18th Aug 2010, 22:46
An N400... Lovely!!

Glad to see you still kicking and screaming Lucky, long may it continue!

Oh and for those of you still wondering, I haven't had any response from Kwachon or his family. I don't want to push it, just in case. (I'm sure you'll understand what I mean.)

19th Aug 2010, 13:19
Just back from the dermatologist, a 5mm by 15mm keratosis removed from my right wrist. Par for the course if you're over 60, blond, blue-eyed and live in a sunny country: every few years a very fast-growing bunch of cells pops up on the surface and gets frozen and scraped (if small) or cut out (if big). Dermatologist always does a full body check at the same time.

Question: does anyone know whether there's a relationship between these 'harmless' growths and something nasty like melinomas ? If you get them, are you more likely to have a melinoma, or is there no direct relationship between reoccuring keratosi and melinoma ?

Best wishes to all on this thread........OFSO

Say again s l o w l y
20th Aug 2010, 12:37
I want all of you to keep well for the next few weeks. The lovely Ali and I are just about to disappear to Canuckistan for a month for our slightly delayed honeymoon...

WooHooo!!! At bloody last. I'll even have the restriction on my medical almost gone by the time I get back.

So, look after eachother and I'll see you later!

20th Aug 2010, 20:43
k SAS, hope you have a brilliant honeymoon. :ok:well deserved:D

24th Aug 2010, 20:03
We went to see the specialists today - one is the Professor of Surgery at Oxford and he is a urology specialist with a load of prostate cancer research experience, and the other a radiologist. I was slightly concerned that the radio lady was to an extent playing a tune set by the Professor. She seemed to agree with him all the time, which isn't wrong in itself, but she wasn't ever eager to present an alternative opinion, and in fact it was pretty much a waste of her time being there.

They seemed to come down very much on the side of radical (ie total removal) surgery, to the point of removing the nerves that surround my prostate as well. This could be done by keyhole/robotic surgery (two days in hospital) or conventional surgery making an incision a bit like a Caesarian but in the vertical plane (3/4 days). The advantage is that if it does not work completely they can then use radio-therapy at a later date. The disadvantage is that I'd be reliant on Viagra, for ever, which isn't an easy one to deal with, though I'd still be alive ....

They can also treat it with radio-therapy, but if I opt for that they said I'd then not be able to have surgery later if it's not wholly effective. Conventional radio-therapy involves a fifteen minute session every week-day for seven weeks, which isn't great, but also has side-effects such as permanent damage meaning you need to crap loads and the like.

I've decided I'll go to see another specialist for a second opinion. He does both surgery and radio-therapy, so won't have one or the other to push, and as he's also an NHS chap at Guys' in London I can then opt in via the NHS patient choice system to be treated by him if I so want. It's costing me £200, but will be well worth it either way, as I do really want to get a better understanding of the options and the pros/cons.

I found it quite tough to be sitting there surrounded by 'er indoors, the cancer nurse, another doctor (no idea who he was?), the radiologist and the Prof all the while being told that to give me the best chance of a maximum life expectancy I have to make a pretty big decision. They didn't expect me to make it there and then, to be fair, but it's pretty daunting. Seems the nasty cells have been doing their bit for about ten years - flipping lucky I asked for the check, really.

I'm seeing the next specialist on Friday afternoon, so with luck things will become clear quite soon.

Loose rivets
24th Aug 2010, 20:33
You've mentioned Brachytherapy, but did you raise that with the Professor? I guess a Professor of surgery might like, erm, surgery, but I very much doubt he'd give you a bum steer. (Sorry.)

It's a tough one, but you're doing the right thing by really researching the science. I wouldn't recommend going to see my man for advice. He pushed a booklet across the desk, that had a graph for life expectancy v procedure. Based on the graph, I was going to die of something else at 76.

67% success in the worst-case analysis shown. If you get what I mean.

Since Brachytherapy + external beam can have a claimed 97%, there is the power there to do the job. But that's honing the pair of technologies to a double optimum. Then if you remember, backing that up with "Colorflow ultrasound." If only I'd been rich.

I'm perplexed by their going for external nerves. Do they consider these to be a physical danger - a carrier of rouge cells? If so, it does sound as though they're considering the problem to not be contained. Or are they just playing safe?

Even at my age I would not like to lose the 'important' nerves. And I can't see what use Viagra would be if there was no transmission of sensation. I'm making assumptions, but mindful they are questions you should get clear.

One prostate specialist P T Scardino says in his tome, "the climax is contained entirely between the ears." (I think there might be a Sic. in there somewhere. But that's the gist.) This I find difficult to accept. Yes the end result happens there, but reaching that end without the physical stimulus must be extremely difficult.

Keep us posted.

24th Aug 2010, 20:51
You've mentioned Brachytherapy, but did you raise that with the Professor?Yes, and I'd have got a better response if I'd suggested three Hail Marys and a round of port!

He was not happy with brachy, or even that happy with radio at all, which I suspect is tosh. Plenty of literature supporting Gleason 7 patients being good after brachy, and even some showing it working well and for long enough in us youngsters (I'm 51).

In the IT world there used to be a classic sales technique used by IBM - FUD (fear Uncertainty and Doubt) - ie what will happen if you don't buy IBM? He used the same technique - what will happen if I don't cut all the nasty stuff away? Do you want to die an early death because I might have left some cells behind which might just be bad? All that despite a very good histology which says

"There is no perineural or lymphovascular invasion. There is no evidence
of extraprostatic extension of the tumour in these levels.

and :

There is no evidence of extracapsular spread. The seminal vesicles and
neurovascular bundles are intact.
No significant retroperitoneal or pelvic lymphadenopathy.
No bone metastases demonstrated.

I hesitated to tell him that my early years as a tyro pilot and then an airborne warrior had been far more dangerous than anything he might/might not do, but he was working it like a pro. The bugger of it was that my wife, who loves a snake-oil salesman, was there too.

Loose rivets
24th Aug 2010, 21:32
Gosh, it really is a difficult one for you. At my age, I'd have flipped a coin, but twenty years ago I'd have been a lot more circumspect.

Anyway, as I said, you're doing just about everything you can do to get the latest facts.

24th Aug 2010, 23:21
At my Radical Prostatectomy, my Urologist/Surgeon found out that the Ca had moved outside the Prostate. He continued until he was satisified beyound all doubt that he had removed all the Ca.

These include Lymph Nodes, Seminal Vascula, Vas Deferens, Ampula and Ejaculatory Duct

On the morning of Sunday 26 April 2009, he said to me that the operation was successful. He also told me that he had to expand the area of the operation because he found that the Cancer was more aggressive than expected and he spent additional time ensuring that he has removed it all from all surrounding tissue.


25th Aug 2010, 09:02
I never thought this would happen to me...

Fortunately I am not the one affected, but my beloved fiancé went into hospital a few weeks ago with Chronic Myelogenous Leukemia (CML). The disease had progressed quite far, so she has now gone through a severe cure of chemotherapy and is up for stem cell transplant from her brother. The doctor's goal is a complete cure, but more realistic figures are 50/50.

It's a very long and tough wait before anyone can tell the outcome. I work as a flight instructor, single/multi and VFR/IFR. Some days you have to think twice if you are fit for flight. Anyone in a similar situations? How did you cope with it?

Thanks for your help

25th Aug 2010, 12:52
Airborne artist, the urology group at Guys have an excellent reputation and track record, particularly in respect of real-time seed brachytherapy. It appears they also have a DaVinci robotic surgery unit too. I think your 200 pounds will be well spent in talking to them whichever way you end up going. In general terms, the best hospital is a major teaching hospital (Guys is), the best surgery is with the DaVinci system (which they have), the best seed brachytherapy is real-time dosimetry (in which they have plenty of experience) and the best radiotherapy is image-guided intensity-modulated radiotherapy (IGRT/IMRT) - I'm not 100% sure where they are up to with IGRT but would expect them to be up-to-date with that too.

Have a look at this link (http://http://www.prostatebrachytherapyinfo.net/patients.asp)for more information (if you haven't already).

25th Aug 2010, 14:36

Has your fiance discussed targeted therapy with her doctor? It may be that her disease has developed beyond the chronic phase but, in case she is not aware of the success of modern kinase inhibitors, it may be worth asking. I mention it because I am aware that some doctors don't seem know anything about it.

Imatinib is used for CML and, with the myeloid version which I know more about, it has a very high success rate although a few find the side effects pretty bad. About 75% of patients live a normal life and even the CAA will authorise at least a Class 2 medical to those who respond well to this treatment which, incidentally, is not a cure. For those who struggle with Imatinib, there are some later developments (Dasatinib and Nilotinib) which are also working well.

Please do check that this option has been considered.

25th Aug 2010, 15:37
Mphysflier (http://www.pprune.org/members/178619-mphysflier) - that's (with the help of Google) how I arrived at Guys' and Rick Popert - entertainingly my GGGF researched and treated cancer at St Thomas' (now joined the Guys') in the mid 19thC - his book (http://www.amazon.co.uk/Cancer-Varieties-Their-Histology-Diagnosis/dp/1141053179) written in 1872 is still in print.

25th Aug 2010, 20:29

Unfortunately she is past chronic, in the blast crisis. And today I was informed the first round of chemotherapy failed to induce a remission. She has been eating Gleevec earlier.

The doctors are considering going for the transplant right away, or try another round of chemotherapy to get the cancer cells out of the blood. Non of it optimal, but it's her best hope.

Even though I am a Swede, we are living in San Diego and she is admitted to UCSD Medical Center, a research hospital. She couldn't be in better hands, now it's up to the stubborn disease if it wants to give after.

Thanks for your information though

25th Aug 2010, 22:49

I am sorry to hear that but suspected it might be so. It does sound like a BMT is the best option although not an easy route. I do know a few CML patients who are now enjoying healthy lives after BMT.

You may find this site a source of useful information and support. There are one or two people on it who have experienced successful BMT:

www.cmlsupport.org.uk (http://www.cmlsupport.org.uk/)

26th Aug 2010, 04:26

I have probably browsed through every site about CML you can find on the internet. Nonetheless - it was nice and organised. Unfortunately it only gives general information and not specific details about her case in particular.

She is young, got a related donor (her brother) and is a fighter! Unfortunately this round of chemo didn't take her out of the blast phase. Basophils are still pre-dominant in her blood. I don't know your knowledge or background, but would you know if other types of chemo may be more effective to kill the basophils?

Thanks for sharing

26th Aug 2010, 09:29

I am sorry that I cannot be more helpful. My little knowledge on the subject has been gained as a very lucky CML patient who has responded well to Glivec and, in the course of the experience has met other less fortunate patients.

I raised the subject initially just on the chance that you may not be aware. It might be worth raising your question in the Forum of the CMLSUpport website.

My best wishes for the future. It must help her to have a fighter at her side. If it helps, please let us know how she gets on.

27th Aug 2010, 03:14
I did raise the question on cmlsupport and got an answer that a significant number of patients in the blast stage have responded well to dasatinib, maybe not in the long term but certainly in the short term. That may help preparing for the SCT.

In fairness, I have no reason to believe the doctors aren't aware of this. But I will raise that point at least.

I will let you know when I know more about her condition. The doctors are really busy, but the only ones that can tell the real truth about her condition. Perhaps it will help someone in the future...

28th Aug 2010, 18:30
So on Tuesday morning I was in a hot and stuffy consulting room with two perfectly capable but not very personable consultants, who just "knew best". They wouldn't validate their advice with data, and they didn't, it transpires, give me the whole story. In addition some of their work does not represent best possible practice.

Last evening I saw the opposite. A man informed yet utterly approachable, happy to back up his advice with good quality data, who gave full and complete answers to all my questions, and who despite it being 18.45 was not in a hurry to get me out of his rooms. The fact that I'd paid £200 to see him may have helped, but I doubt his bedside manner changes abruptly when he's with the poor people.

So my prostate will be whipped out using a robotic surgical device, and I'll then have the fun of what he called, no joking, penile rehabilitation. But he was open about it, unlike my first chap, who wouldn't really be drawn, and what is more he can see me on the NHS so long as the system can be made to work as it should.

Loose rivets
28th Aug 2010, 18:50
The fact that I'd paid £200 to see him may have helped, but I doubt his bedside manner changes abruptly when he's with the poor people.

Well, good luck on that one.

Nothing to do with prostates, but a neurosurgeon that I went to see about my back was an example of charm and consideration. I had paid about the same as you.

When I put pressure on my GP to be able to see him on the NHS, I turned up on one of his Hyde days. The charming Dr Jekyll had gone. He told me my interpretation of a procedure was bolloks. A word he used no less than three times before I'd left.

When I reread his private letter - the one that was copied to my GP - I soon realized it was almost an exact precis of my words to him. F:mad:k, I could have written it myself. Worst still, I'd had HOTAC and 200 mils of driving just to make that appointment.

Just people. Hard to find a super-being in any profession.

28th Aug 2010, 21:29
his bedside manner

Please cut them some slack. Think about it, when most of you go to work, you assume everything will have a happy ending day after day.

With oncologists, nurses, and surgeons, this is not always the case. They may NEED to distance themselves from you as a person in order to have the detachment to provide you the best care.

Yes, they should deal with the patient upfront, and you shouldn't let them write you off or forget details. Bring a patient advocate, or at least a less stressed listener if need be.

I don't mean to trivialize it with this analogy, but it would be an irresponsible pilot that focused on little Johnie dropping a crayon in aisle 26 rather than flying the plane.

Doctors can get overwhelmed. Recognizing this helps.

28th Aug 2010, 21:49
And there's this story, or does it belong on a hamster wheel thread?

BBC News - Government confirms plan to scrap NHS Direct helpline (http://www.bbc.co.uk/news/uk-11120853)

I'll pick up the crayon no problem.


28th Aug 2010, 23:04

Last evening I saw the opposite. A man informed yet utterly approachable, happy to back up his advice with good quality data, who gave full and complete answers to all my questions, and who despite it being 18.45 was not in a hurry to get me out of his rooms. The fact that I'd paid £200 to see him may have helped, but I doubt his bedside manner changes abruptly when he's with the poor people.

So my prostate will be whipped out using a robotic surgical device, and I'll then have the fun of what he called, no joking, penile rehabilitation. But he was open about it, unlike my first chap, who wouldn't really be drawn, and what is more he can see me on the NHS so long as the system can be made to work as it should.

At least you have now secured a Urologist who is a no nonsense Surgeon.

You'll be fine

BTW, can you claim Medical Expenses over a certain limit as a 'deduction' on your Taxation Return?

In Australia, we can and so I developed an Excel Spreadsheet which set out all my Medical expenses in the Financial year in which I had Surgery - it was a considerable outlay above and beyond what returns I had from my Medical Fund and what was met by the Australian Medicare System. It was an allowed Deduction

Let me know if you need a 'template" of the Expenses Sheet.


29th Aug 2010, 08:24
BTW, can you claim Medical Expenses over a certain limit as a 'deduction' on your Taxation Return?

Only if you are a Member of Parliament, I think :}

The good news is that all my post-op drugs, including the little blue pills, will be free of prescription charges as they relate to my Ca.

VMT Mike - AA

2nd Sep 2010, 01:32

Thank you for the advice. Actually I am very happy she is at UCSD, there is a whole team of oncologists/hematologists working on her case. She is now going for the preparative regime and thereafter allo-SCT.

I have not heard of your father's cancer, but I am soo happy to hear they gave him another 18 years!! 84 is a reasonable age for anyone to nod off. She is only 28, and should have many more years left.

All the best

18th Sep 2010, 10:17
Oh Dear! Latest scan results show cancer in the sacrum area of my spine.:sad: At least they've allowed me to continue on the medical trial and there is no increase in the mets elsewhere.

18th Sep 2010, 18:30
My second opinion has come up trumps, and taken on my troublesome gland. I'm booked for the chop on November 10th.

19th Sep 2010, 10:01
Good luck, AA....hang on in there...and the postop misery has an end, too! It's a year since my TURP and three since my IMRT and I'm asymptomatic with a PSA of 0.19; cautiously optimistic. Now got to go take the gearbox out of my Lotus....

19th Sep 2010, 10:49

You'll be right. Once its out, you'll enjoy getting PSA readings of less than 0.04!!!!


23rd Sep 2010, 12:45
A happier note:

18 months after diagnosis of AML, I am now confirmed to be in remission.

Due to my age (57) there was not much hope (<10%) - but a "heavy hammer" chemo seems to have worked.

The chemo nearly killed me - two weeks in a coma & last rites, very hard on my wife & kids, who were called in to say last farewells, residual neuropathy damage, but it worked - the idea was to kill everything without killing me, & it don't get much closer...

By crikey life now looks good

My heart & prayer go to all those not so lucky right now - but don't give up.

PM if anyone wants to chat

Say again s l o w l y
23rd Sep 2010, 12:51
That is brilliant news gupta. AML is a nasty sod, so to hear about people beating it is great. Cancer 0 - Gupta 1.

AA, good luck!

Lucky, all the best mate, hopefully the trial will sort you out.

23rd Sep 2010, 12:55
Say Again Slowly,

I wish you all the best , fight your way out , dont give up, i will send a pray for you , and you are a great and openminded person .
i do know a youngster who fought with success his disease , and is now flying KL, remember with the multicrew situation it is possible to start flying again.
Nevertheless, as a Cpt B737 , i would be pleased to fly with you !!!

23rd Sep 2010, 13:40
Thsnks SAS

But I don't like to look at the score as Cancer 0 Gupta 1 - in the words of the IRA, they (cancer) only have to be lucky once, the target has to be lucky all the time. That's probably not the most appropriate phrase, but thereagain right now I really couldn't give a toss for normal sensibilities.

The most important thing/thought through the whole episode was faith/self belief - but it didn't have much to do with the outcome, only with life through the process.

I still have incredible resentment (when I allow it) at this foul disease. But half the battle is acceptance of what is really important in your life, and letting go of the petty angers and time-robbing "stuff".

Now I still get angry in traffic but calm it down very quickly - it doesn't matter. Same elsewhere - and it also gives me licence to be a Grumpy Old Man - without the ongoing carriage of the initial insult or whatever it was.

More importantly, now I laugh & smile a lot more - and I am amazed now at how many people smile back!!!!

Ther is so much now in life to give to others

Sorry for the ramble but I feel among friends

Say again s l o w l y
23rd Sep 2010, 16:02
Why thank you very much Mr Thunk, but I'm all fixed now and due to get back to flying properly any day. Well, once I get over this latest bout of flu anyway!

Gupta, it's amazing how your attitude does change after something like this. I'm far more chilled out now than I ever was before and things just don't worry me in the same way that they used to. It's turned me into a much nicer person!

5th Oct 2010, 10:04
Further to Posts 1878, 1879, 1880 and 1964, I add:

Update 5 October 2010

PSA Blood Test for Specialist was undertaken on 23 September for 6-monthly visit on 5 October 2010.

Met with Dr John Miller at his Rooms, 116 Partridge Street Glenelg, South Australia at 0900 Hrs.
He informed me that the PSA Blood Test result shows a PSA Value of less than 0.04 and as expected.

I discussed my progress regarding my health and well-being and in particular my continuing “being free from any uncontrolled or unfathomable Incontinence issues.”

I also discussed my continuing Erectile Dysfunction and that the current situation poses no problems for me (and my wife).and I am not worried about it. My wife is not concerned.

I also informed Dr Miller that i had made contact with friends and Website:

http://www.yananow.net/Links.html (http://www.yananow.net/Links.html)

He said awareness amongst Males of Prostate issues was important.

He said that he will see me again in six months and if any urology issue should arise, I am free to contact him immediately.

Next meeting scheduled for 5 April 2011.

Mike McInerney
5 October 2010

5th Oct 2010, 12:14
Mike - I am in the exact position as yourself,all the difficult bits are behind me and I have found that things are not as dire as I expected - the incontinence thing was my biggest worry and progress was not constant but I am back to normal now.I could not have been given better treatment (in Scotland),and the surgeon that treated me was absolutely marvelous.As an aside I see your doctors address as Glenelg - I lived there in 1950! - Semaphore road rings a bell. Good luck with your progress and spread the word about awareness - it need not be a killer.

5th Oct 2010, 22:06

Didn't go to Glenelg Primary School did you?

If so my old man Tom McInerney was No 2 there.

I went to Glenelg 1949 to 1955. Born and raised at Warradale.


6th Oct 2010, 16:02
Cannot remember the name of the primary school - only stayed in Australia 18 months then moved on to Singapore with my parents - my father was a Licenced Engineer with ANA then with the old Malayan Airways.

6th Oct 2010, 22:00

The Glenelg primary School is situatted at Google Earth


The old limestone main bulding of the school was demolished in the 1970s and was situated where the green playing area is.

Next door to it (north) is the Glenelg Football Oval

Glenelg has changed dramatically over the last 15 years - you wouldn't recognise the sea shore areas.


14th Oct 2010, 14:07
Luckily I'm now being treated at Guy's in London, but I started out at the Churchill in Oxford. Now you'd think that the Churchill would be able set up a system that worked, and keep it working.

Seems not, sadly. In summary they took 71 days to do what should have taken no more than 31 days, and they haven't even done what the annual report says they were doing, or if they have, then the improvements are imperceptible. They can't answer FOI requests fully, and they can't manage a complaints system, either.

Prostate patients have a 20% chance of missing treatment-time targets, while breast cancer patients have a near zero chance, but it's very possible that the ORH can't actually count properly, and so may be putting out incorrect performance data, though I can't yet prove this.

I've started a blog on the Churchill, here (http://tinyurl.com/prostateblog).

14th Oct 2010, 21:27
While I rarely post here I do read in from time to time and quietly send a message to the skies to keep those of you battling C as strong and full of optimism as can be :ok:

Thus far I am fortunate to not rank among you, but I was wondering if any of you have tried out the asparagus therapy mentioned earlier in the thread?. Apart from turning pee green, a daily dose of asparagus (puree or cooked) can't do more than be one of your daily five fruit/veg can it?

Say again s l o w l y
14th Oct 2010, 21:42
a_a I'm glad you're getting looked after properly now. Sometimes you do have to kick and scream to get looked after properly. All the best.

Brockie, I'm not convinced about any sort of fad diet that supposedly helps in the fight against cancer, but if people think it helps, then it I suppose it can't do any harm and the psychological aspect might have some benefit.

Let's put it this way, when I was in treatment I ate anything I wanted (as my waist line testified...) and one of the blokes I started my treatment with went immediately onto one of these cancer beating diets.

I'm alive and he isn't.

Now, that's hardly a scientific test and I would never draw anything meaningful from that one example, but I think the massive doses of chemo, radio and all of the other fun stuff has a far bigger effect on whether you're going to beat cancer than eating a bit of veg everyday...

14th Oct 2010, 23:45
My best wishes too. My father contracted lung cancer after having already had a heart attack, a triple bypass and a stroke. He had radiotherapy and was declared clear last year. He remained amazingly positive throughout and refused to give an inch and attributes much to his positive attitude. Great to see all the support you have on here, - wonderful! PP. :ok:

Cyber Bob
15th Oct 2010, 09:15
Say again

I'm living proof that you can beat it. Diagnosed in 1991, treated at the Royal Marsden in Sutton (Fantastic facilities and people) and after treatment and countless check up's ranging from every month to annually, given the all clear in 2001.

True what others' have said on here. Bloody minded approach is needed. My frame of mind was, "Ain't gonna beat me". Just wanted all the kit and hospital support to beat the sucker, which luckily I got.

To be honest, there are going to be days during the treatment when you ain't gonna feel great but rest assurred, that's only gonna be temporary.

You've already overcome the first hurdle by posting, talking about it and a willingness to face this head on.:D If you maintain this positive approach thoughout, you'll come out smiling.:ok:

All the best fella and if I can help in anyway through shared experience, PM me.


Say again s l o w l y
15th Oct 2010, 13:06
Thank you chaps, but I'm a fully paid-up member of the good news survivors club now! Even the Docs can't be bothered to see me anymore!

19th Oct 2010, 11:54
I'm the front cover of the Oxford Mail today :eek:

Cancer patients waiting too long for treatment (http://www.oxfordmail.co.uk/news/8459726.Cancers_patients_waiting_too_long_for_treatment/)

but don't worry - I've not the centrefold as well ;)

19th Oct 2010, 13:17
In any dealings with the health system, you have to take charge of things yourself. Waiting for someone else to do something is not an option. My treatment at the Royal Marsden has been exemplary, but I have always ensured that I stayed very much involved with what was proposed and carried out. Good luck, AA....

10th Nov 2010, 09:23
I have been following with some interest, for many years now, this thread by SAS. As a matter of fact I have been following it since day one having had cancer myself prior to him, and to a far greater degree than he, and I also survived. Many times I thought of writing to SAS to give him the benefit of my experience but decided not to as he was going down a different path to me and would probably not wish to have my input. Obviously SAS has now had a clearance from the medical people and for that I am pleased, for him and his family. However, to make the comments, as he has done, in his recent posts, criticising others who followed a different path to him is beyond belief! I wish you all the best for your future SAS but please don't get cocky and arrogant about your survival, many others have done it before you, but, more importantly, many others have not survived. Think of them and their families, not yourself!

God bless.

Say again s l o w l y
10th Nov 2010, 10:32

I'm not sure what I have said to offend you.

If you are referring to my comments about diets etc. then I'll stand by my position. If the Doc's thought they worked, then all cancer patients would be put on them immediately after diagnosis and since they are the experts, then I'll defer to them if you don't mind.

They know a shed load more about the whole cancer thing than any number of cancer patients and keyboard warriors combined.

Cocky and arrogant when it comes to cancer? I don't bloody think so. Sometimes, no matter what is done, your time is up. If chemo or radio can't help, then eating broccoli or miso soup will have exactly the square root of **** all effect too.

There are all sorts of charlatans out there who will happily prey on the fears of cancer patients and their families to make a few quid. Untested diets, supplemements or books on doing stupid things in the belief that you might find a miraculous cure.

It's invariably utter horsesh*t and I'm sorry if this does offend people, but the way to beat cancer is to trust in your Doctors and the treatment that they provide. Look after yourself, don't put yourself in positions where you could get other illnesses that may then have a negative impact on your treatment and hope for the best. There's stuff all else that you can really do.

Mad/fad diets might help purely from a psychosomatic point of view and whilst that can be of course benficial to your mental well-being, if you trust your life to it and ignore standard medical advice, then the chances are that you won't get better.

If you want to wind up an oncologist or haematologist, then mention to them that positive thinking made the difference. I was chatting to my doc one day and he said that the idea that you had to be positive all of the time was actually dangerous, because people cannot be like that everyday. If they consider being negative to be bad for their treatment, then they can sometimes lose hope and start doing silly things as they consider the battle to be already lost. Things like refusing treatments, not taking medicines, not turning up for scans or procedures. It happens more often than most of us would believe.

Positive thinking helps you ride out the treatment better, but in reality it doesn't make a difference to the eventual outcome of whether the cancer is defeated or not.

If this offends anyone, then seriously, have a word with yourself. This is cancer we're talking about, not tiddlywinks.

10th Nov 2010, 19:51
Well said, SAS.

Loose rivets
10th Nov 2010, 21:42
I think the only really negative thing might be raising people's hopes, and then dashing them again. As for the possible effectivity of these kind of foods, if you have a spare few minutes, search my "Have I witnessed a miracle?" thread on the medical forum.

I waited a further 6 months after my pal started seeing some results from taking curcumin for Parkinson's. The results were astounding already, but I thought - but didn't say - that it may have been a natural glitch in the disease's progress.

I'm fairly sure it was Mac the Knife that pointed us to a uni in Austin that was doing some of the world's most advanced research on that spice?herb?? My pal didn't even know, despite being 6 miles from them.

I'll come back when not covered in mud and me water is flowing properly from the canal. :(

10th Nov 2010, 22:03
Obie, Eh? What are you talking about?

Say again s l o w l y
10th Nov 2010, 22:23
Rivets, there's nothing wrong with certain things like trying circumin, there is research to say that it MIGHT do something. It hasn't been proven yet and it might never be, but it is being tested by proper scientists in a proper peer reviewed way.

I have no issue with stuff like that. It might make a difference and if it doesn't, then it won't have done any harm.

It's the untested stuff and diets that have been written by fraudulent charlatans like Gillian McKeith (and yes Mrs McKeith's lawyers, she is a charlatan, as proven by Ben Goldacre) that are designed simply to remove cash from people's pockets rather than do anything to help their health that I have a major problem with.

Hope all is going well.

11th Nov 2010, 07:47
You're all supposed to be sharp cookies...being airline pilots and all that sort of stuff...then again is that really true for all of you? After following this thread from the beginning 3 yrs ago, I don't think so!

Do a web search for "The Open Source" and then go a bit further and search for "Mike Anderson" and then go a bit further again and search for " The Rave Diet ".

If you persevere it will change your thinking and your life!

As a fellow pilot if it helps one person I'll be happy!

Say again s l o w l y
11th Nov 2010, 12:09
Are you taking the p*ss?

The "Rave Diet"? This bloke is trying to make money on the simple principle that everyone already knows. Don't eat crap and you'll be healthier.

Woo, that's ground breaking research that is.

The claim that the Rave Diet has cured heart disease, is exactly the sort of charlatanism that I despise.

Eating well of course helps you stay healthy, but I don't need some quack story peddlar to remove cash from my pocket to tell me that.

Utter, utter crap.

11th Nov 2010, 13:13
This page on the rave diet says it all for me "http://www.ravediet.com/pricing.html"...


Disseminating info nowadays for minimal cost money, thanks to the internet, is very straightforward. Just run a blog, or set up a website - not expensive to do.

If someone really, truly, genuinely wants to help others by sharing what they have learned, just post it online - no money-making dvds or books needed.

If someone wants to make a profit by selling their idea, they post very little real info about their idea/product apart from testimonials and rave reviews, which are all about selling.... And have a home page which only lists their products, not any info about who, what, or why.

Anyway, I digress, this thread is about, and for folks who are touched by cancer.

Glad to hear you have the all clear, SAS. How's it going with the CAA? Are they allowing you to go back working daft hours along with the deep honour of being able to wear your own yellow vest on a daily basis yet?

Say again s l o w l y
11th Nov 2010, 13:32
All sorted now Ferny!

Here are a couple of pics from yesterday.



11th Nov 2010, 13:54
Oooh - looks cold! I'm in Augusta, Georgia for 36 hours. Should be outside enjoying the warmth instead of jetblasting....

Mac the Knife
11th Nov 2010, 14:13
"....fairly sure it was Mac the Knife that pointed us to a uni in Austin that was doing some of the world's most advanced research on that spice?"

I doubt it was me (unless I had my tongue firmly in my cheek)

SAS sums up the situation as regards diets and additives and snail-juice very well.

There is not one scrap of evidence that asparagus, megadoses of Vitamin C, mistletoe juice, crystals, etc., etc., influence the course of cancer one whit.

Visualisation therapy and such like, that one would think fairly harmless, can make patients very depressed and non-compliant for the exact reasons that he discusses. When the cancer progresses, the patient feels that s/he has let herself and her therapist down by "not being positive enough" in the visualisation and may then develop feelings of guilt and hopelessness.

The cachexia and loss of appetite associated with advancing cancer is currently a major research effort in scientific dietician studies (it may kill the patient before the cancer does) and is slowly becoming a little less mysterious.

One thing for sure though, the anorexia is a profound, physiologically based response, probably hormone mediated and CANNOT be changed by encouragement, little appetising meals, psychotherapy, coaxing or shouting and so on.

A very interesting aspect of a complicated and heterogeneous family of diseases.


Loose rivets
11th Nov 2010, 16:31
Well, here's the link and two clicks down, your answer, Mac.

As always, well written and balanced, but I would have thought there was no tongue-in-cheek factor to be seen anywhere.


Mac the Knife
11th Nov 2010, 18:23
No, you're right, no tongue-in-cheek, but I was careful to sound a note of caution, read my reply carefully. This was by no means an endorsement of cucurmin (and still less of unsubstantiated therapies).

My caution at the time is borne out by the now available results of the Phase II trial in pancreatic cancer which basically show that cucurmin appeared to have slowed cancer progression in 3 of the 25 patients. Disappointing, for we'd all welcome a real therapeutic leap, but that's how science works.

I quote from my post that you refer to:

"Mouse studies at the University of Texas M.D. Anderson Cancer Center have shown that the spice blocks growth of a skin cancer, melanoma, and inhibits the spread of breast cancer into the lungs."

This was a reference to a very preliminary study - I continued

"Hmmm. I treat both, and follow the literature quite closely and I haven't come across either study. Mind you, I don't follow the mouse research much. Certainly there are no human trials in progress that I know of, which, given that cucurmin is pretty non-toxic, suggests that extrapolation of whatever mouse results they got, to humans is moot.

One of the things that I find annoying about the alternative medicine community is their insistence that conventional science disregards their nostrums. On the contrary, an enormous amount of proper research on herbal remedies has been and is being carried out. Much of the time this shows that the much vaunted effects do not occur which the alternative medicine industry refuses to accept. But occasionally genuinely useful drugs, like Artesunate, the Chinese antimalarial from artemisia emerge and are accepted.

Great things may have small beginnings and observation of anecdotal effects have led to many great advances in science. It seems that the therapeutic usefulness of cucurmin in a number of disease states is currently under active investigation. So far, nothing earth-shattering has yet emerged, but that is not to say that it may not prove useful in some conditions."

But to get back to the point, we can only trial modalities for which there is some scientific rationale and which have shown some evidence of effectiveness in well-controlled animal models (like cucurmin) and progress from there.

Modalities for which there is no scientific rationale and no evidence of effect will continue to be "trialled" by unfortunate people desperate for relief.

I do not think that this should be encouraged.


PS: A couple of posts later I referred to Prof. Michael Baum's original letter querying the use of unproven treatments on the NHS and his answer to criticism of it - http://www.spiked-online.com/index.p...e/article/931/ (http://www.spiked-online.com/index.php?/site/article/931/)

Well worth a read.

12th Nov 2010, 07:29
For the more enlightened amongst us who don't believe that poisoning, burning and cutting do anything other than damage the health of people whilst putting lots of money into the pockets of doctors, surgeons, specialists and the pharmaceutical companies, you might like to do a web search for a newsletter by a Dr John McDougall, an American and well credentialed MD and nutritionist.

Mind you, as I said, only the enlightened will do the search and change their lives. The armchair, unqualified, young, know it all types who know every thing about medicine and nutrition (having never studied either!) wont be interested!

Which is a terrible pity!

Say again s l o w l y
12th Nov 2010, 10:29
You my friend are an idiot. I and thousands of others are still alive thanks to cutting out, burning and poisoning. Would I still be here if instead of chemo I'd have taken a nice glass of guava juice and rubbed a cucumber on my forehead twice a day? Don't be so unutterably stupid.

You do realise that anyone can call themselves a nutritionist. Even me. It's an unprotected term and vast numbers of fraudsters, charlatans and other unsavoury characters who prey on people's fears and worries to earn themselves money by peddling quack "cures" use it.
This bloke you mention might be a Dr and his ideas about eating healthily may well halp to prevent certain things, but when it comes to actually treating diseases you are having a laugh. In fact if you read his stuff, he mentions doing his diet alongside conventional treatment, especially in the case of breast cancer. Not replacing it.

If you ever have the misfortune to get diagnosed with cancer, I'd advise you to change your mind and get treated by someone who actually knows what they are talking about, because if you don't, you'll die. End of story.

You want to trust your life to simply eating veggies? You really are nuts. Poor old Barry Sheene tried that and look what happened to him.

Now do run along and go play with the traffic, there's a good chap and if you ever get properly ill or injured, then I'd suggest putting some money into the pocket of a drug company or Dr.

It's amazing how my treatment didn't cost me a penny and as far as I've noticed I didn't see my Doc buying a new Porsche on the back of treating me. Maybe he loves his 10 year old Citroen and doesn't want to give the wrong idea, or maybe it's because he works for the NHS and so doesn't get paid by the number of patients he treats or by what drugs he uses. He just does what's best for his patients, like all Dr's should.

12th Nov 2010, 11:47
SaS - can I just say that I hate the way you sit on the fence? :}

As one has had my (non-cancerous) heart mended by a bloke with a chain saw, a knife and some of my spare blood vessels I'm heartily (sic) in favour of the mainstream medical profession! :ok:

Say again s l o w l y
12th Nov 2010, 12:02
You're right angels, I really should learn to speak my mind a bit more...

12th Nov 2010, 15:00
Thanks, SAS, I now have this mental image of you rubbing cucumber into your forehead that will remain with me for quite some time.... :ok:

Loose rivets
12th Nov 2010, 17:05
It's amazing how my treatment didn't cost me a penny and as far as I've noticed I didn't see my Doc buying a new Porsche on the back of treating me. Maybe he loves his 10 year old Citroen and doesn't want to give the wrong idea, or maybe it's because he works for the NHS and so doesn't get paid by the number of patients he treats or by what drugs he uses. He just does what's best for his patients, like all Dr's should.

Here in America, a proportion of people - roughly equal to the population of England - would think that was an impossible dream. Even my well insured rellie is reeling from the shock of the co-payments for an MRI and few checks...with no hospital admission. $thousands. So what was the full amount? Maybe, not much more. Most of the true financial agreements are secret.

Say again s l o w l y
12th Nov 2010, 18:28
I thank my stars on a daily basis that I don't live in the States, especially when it comes to health care.

The NHS might be a pain the backside sometimes and it certainly isn't perfect, but by all that's holy. I wouldn't be without it.

Dr Jekyll
12th Nov 2010, 18:58
Now do run along and go play with the traffic, there's a good chap and if you ever get properly ill or injured, then I'd suggest putting some money into the pocket of a drug company or Dr.

YouTube - That Mitchell and Webb Look: Homeopathic A&E (http://www.youtube.com/watch?v=HMGIbOGu8q0)

Say again s l o w l y
12th Nov 2010, 19:07
Says it all really! :ok:

12th Nov 2010, 20:01
Its not just the UK where the you have access to medical treatment free of charge (NHS).
I live in Sarkozy country and have been operated on in double quick time and receive chimo treatment all paid for by the french national insurance and not a single euro required from my compementary insurance.
I hope the US of A will be able to have a similar system in the future.
And aside from the paying matter, that I really hope the rest of the world will soon be able to have access to treatments and medication as we have in Europe (this includes the UK :} )

And BTW, the surgion who operated on me drives an Audi Q7 and I have also seen him in a mini cooper.
He's welcome to it. He is an ace in his specialism and saved my life. :ok:

the way to beat cancer is to trust in your Doctors and the treatment that they provide. Look after yourself, don't put yourself in positions where you could get other illnesses that may then have a negative impact on your treatment and hope for the best. There's stuff all else that you can really do.

could not agree with you more SAS

12th Nov 2010, 20:20
Steady on now SAS, you might spill your cauliflower and pomegranate smoothie! Puts hairs on your...face ; )

west lakes
13th Nov 2010, 00:37
an American and well credentialed MD and nutritionist.

So my wife's father was a nutritionist and a herbalist

He died of throat cancer

Did he try to treat it - yes, did he succeed - no

He went to the NHS far to late for them to help him.

But the big bit of this was that my wife (we married after his death) who had become a nurse, been asked to leave his house because she joined the NHS, got the blame for his death!

I've got a number of bits of stuff including prostate cancer and type 1 diabetes, without the drugs I possibly would not be posting this

Say again s l o w l y
13th Nov 2010, 03:02
mats, you've seen my Movember attempt! I need a bit of help before I can match Westies manly whiskers though!

IFTB, from my limited experience, the French health scheme is superb and in many ways a little bit better than what we have on this side of the sleeve. France might like a good bit of striking, but it's another place you want to be if something nasty happens to your health!

14th Nov 2010, 09:15
Deleted & thread banned!

Say again s l o w l y
14th Nov 2010, 10:28
I'm killing myself? Very odd. The fact I'm typing this tends to make a mockery of that.

So just to make things clear, you are suggesting that people who are unlucky enough to develop cancer should ignore conventional medicine?

You are suggesting this because it worked for you? So, on a sample size of one person you think people should ignore years of research and the results of hundreds of thousands/millions of patients across the world?

And you accuse me of arrogance. Oh my word, the irony is strong with this one!

Even if it took you 3 months to get over it, if you were here in the UK, you wouldn't have got back to work very quickly. The CAA see to that, not the Docs who treat you.

There's nothing wrong with me now. I've been working for the last 18 months. I might not have been flying, but I've done a masters degree, helped put a new business together and a whole load of other things. There is life outside of the cockpit you know.

The best advice any cancer patient can get is to listen to their Dr not some oddball with no medical training on the internet.

Thanks for playing chuckles, but I'm bored with you now. You're just a fruit cake with added nuts and an offensive one at that.

14th Nov 2010, 11:20
A brief perusal of all Obie's previous posts gives some idea of who is the bitter and twisted one here...

Oooh how exciting, I get to try out the 'ignore list' - can't stand armchair oncologists!

14th Nov 2010, 14:36
Nice one, Obie - take a nice, straight forward thread that has been giving support and comfort to a bunch of people for quite a few years now, and use it to make personal attacks.

Thats really classy, and quite revealing.

14th Nov 2010, 18:42
While you in Blighty were watching Spooks I was in Recovery having had my walnut-sized gland removed with some clever robotic kit and some even cleverer people flying it, and then up to Florence Ward. By 0400 I had growing spasms, which Mr Popert (my surgeon) dealt with when he came at 0800. I was about to go home after lunch when they came back, with a vengeance, luckily just as Netty Kinsella (the dreamily wonderful prostate cancer nurse) came to see me. She was as quick as Rick Popert in dealing with the pain, but we all decided that I wasn't ready for the rigours of a trip home and a night away from the pros.

By Friday I was much better, and the trip home was OK, as was last night, though I may have done a bit too much today, according to my body, bit it would have taken a lot more to have kept me away from the Remembrance Service.

Surgery was good, and uneventful, and the team are sticking to their T2C staging having seen the blighter up close, which means it's probably contained within the now absent prostate.

I can't speak highly enough of Guy's, and Rick Popert and Netty Kinsella in particular. Quite why Netty isn't a surgeon herself is quite extraordinary, and even Rick Popert wondered that to me before I left.

Just for fun I'm growing some face-fungus for Movember. If you have money looking for a home you can put it in the pot for Prostate Cancer here (http://uk.movember.com/mospace/734738).

Day 15:

http://farm5.static.flickr.com/4144/5175270990_d9a44a86e2.jpg (http://www.flickr.com/photos/[email protected]<hidden>/5175270990/)

Say again s l o w l y
14th Nov 2010, 19:29
Nice one A_A. That's brilliant news. Fingers crossed you get over it as quickly as possible.

I am also doing Movember and currently look like a total tit, but it's for a good cause!

Here's me 2 weeks in. (Yes, I know I'm breaking the rules by joining my beard with my sideys, but I couldn't give a monkeys!)


Here's my mo page if anyone wants to be generous. It all helps! Movember United Kingdom - Home (http://uk.movember.com/mospace/819496/)

14th Nov 2010, 20:52
Airborne_Artist, Age: 11 ... :eek:

14th Nov 2010, 21:04

Don't be a martyr and over do the physical activity in the recovery period.

well done.


14th Nov 2010, 21:12
Cheers all

mmciau - I'll be relaxing with a good book this week - I have Beevor's D-Day to read :ok:

SAS - were you an airborne warrior, too, looking at the T-shirt? :}

fernyt - in the real world the person who types this is 51 ;)

Say again s l o w l y
14th Nov 2010, 21:24
My military experience extends to being in the OTC for a bit! This was just the first T-Shirt that came out of the drawer this morning.

I'm a Colchester boy and the old man spent a lot of time shouting at people at Gujarat Barracks, so I have a few different airborne shirts. I shoot with the 16th AAB gun club when I'm dahn sarf, but that's the extent of my association with them.

15th Nov 2010, 01:24
I kind of thought that was a lot of facial fuzz for an eleven year old.... :ok:

JB Mods
22nd Nov 2010, 20:26
Dear all; next time somebody abuses this thread to air their delusions and anger-management problems, will somebody PLEASE use the report to moderator button http://images.ibsrv.net/ibsrv/res/src:www.pprune.org/get/images/buttons/report.gif on the left of each and every post?

Apologies for not catching this earlier.

JB Moderators

Say again s l o w l y
22nd Nov 2010, 21:42
Nae worries. I didn't report it simply because I don't mind having a fight with a muppet!

Loose rivets
22nd Nov 2010, 21:49
Gujarat Barracks

Coo...many the time I've cut through that area in me little T/V repair man's van. I didn't like the look of the place...to much shouting going on.;)

I was scared they'd call up the last quarter of '39, I was hanging onto the govenmint's decision for months. What a sigh of relief when they didn't. I didn't have the qualifications to peel potatoes, let alone fly.

23rd Nov 2010, 02:29
I must admit to having been a long time lurker and reader on this thread. Whilst never publically joining in, I have often wished you well SaS, drawing inspiration from your postings whilst at the same time being secretly glad that it wasn't me.

Well, now the time may have come. I go into hospital in December for removal of a tumour from my jaw, not knowing yet if it is malignant or not. I would like to say thanks for all the inspiration I have been able to draw from so many good posters.

Cheers .

23rd Nov 2010, 04:18
Fingers and all toes crossed for you, stickyb.
Good luck.

23rd Nov 2010, 04:21
I hate to be a me-tooer, but I will echo the post above. I don't know yet what one will get me, but at least this thread helps one feel like you have a very large family to fall back on with experience to boot :ok:

Every time I go into the Docs office for one of those cancer tests (biopisies, PSA etc.) I'm prepared to come back and read this thread a lot more closely

Loose rivets
23rd Nov 2010, 04:36

I hope yours turns out to be nothing serious, but when I was having the juice sucked out of me eyeball, I was sharing a ward with guys that were recovering from various forms of cancer in the throat, jaw and other areas of the noggin. All seemed in good spirits, and the one that had the most radical surgery, became quite animated while he told me a tale or two about hydraulic ducts under rivers in eastern UK. They'd all had serious issues, but every single one of a large group had pulled though.

Say again s l o w l y
23rd Nov 2010, 10:12
All the best stickyb, fingers crossed that it's not malignant and that the surgery goes smoothly. Let us know how it goes.

23rd Nov 2010, 11:17
Yeah, sticky, best of luck from me as well.

If you're lucky you could meet someone who could regale you with a

tale or two about hydraulic ducts under rivers in eastern UK.

or if you're unlucky, you may not.....:E

Oh, and mods, if there's anyone on all of Pprune who can look after himself I think SaS fits the bill!!

Loose rivets
23rd Nov 2010, 14:39
If you're really, really lucky, you might get to hear about the power ducts under the Thames. :rolleyes: Provided the power for the cranes on the south side they did. You can't beat a tale or two from these old-timers.

23rd Nov 2010, 16:23
Just thought I'd add an update - over a year ago this thread was incredibly helpful in helping me overcome my initial shock at my Father having prostate cancer

He decided to go down the hormone therapy route , his PSA has dropped from over 400 to 1.1 and has been there for nearly a year !

Obviously the hormone treatment is having some side effects , but nothign that is stopping his normal everyday life, although he considers it the ultimate insult that his urologist has , and I quote " very short skirts and giant norks!"

The guys at work have raised nearly 4000CAD for Movember as well , although it does feel like I'm working in a sixties porn movie at times !

23rd Nov 2010, 20:48

That's good that the Old Man has progressed really well after treatment..

Best wishes to him


24th Nov 2010, 18:35
Hi I was diagnosed in Feb this year had my licence suspended pending more PSA results, looks like I will be able to fly but only with a safety pilot have you any views on this.. ken ps Psa 0.2

Loose rivets
24th Nov 2010, 23:59
That figure is presumably ng/ml. How does that compare with my 8 something or another?

I'm not really sure why you would have any restrictions...the one thing about prostate cancer - apart from possible flow issues - is that it's asymptomatic.

Say again s l o w l y
25th Nov 2010, 02:01
The CAA are a mystery unto themselves when it comes to this stuff. Get your Doc to say that they have no reason to expect you to fall over at a moments notice. It might help.

Good luck with the treatment too.

Loose rivets
25th Nov 2010, 05:36
Charlie Rose tonight: Dr. SIDDHARTHA MUKHERJEE

Seldom am I impressed with an individual, but this man took my breath away. Just his clarity of thought, and the obvious possessor of a guardian angel.

When he wanted info on the first chemo recipient, he had the initials, but couldn't find the full name of the 2 year old patient from all those years ago. He went home to Deli to visit family, and a man a mile down the road gave him the name. Sounds quite a read, right down to inner cell level and stem cell research. Such a powerful mind.

'Emperor Of All Maladies' Traces Cancer Treatments : NPR (http://www.npr.org/2010/11/18/131406108/-emperor-of-all-maladies-traces-cancer-treatments)

25th Nov 2010, 16:39
While it's not really JB fodder, the idea that a chap with PCa can't fly is a nonsense. If you can drive, then you can get an NPPL medical, surely?

Fifteen days since my own walnut-sized gland was forcibly removed. Catheter was out on day six, and I had immediate bladder control, despite being sent home with 40 nappies.

I'm now walking for 90 minutes every day with the hounds, and basically back to my old self. Even my bowels are now working correctly, and as we all well know, a good c**p in the morning makes the day go so much better.

25th Nov 2010, 20:07

Well done re getting over the Incontinence so quickly - it took me 3 and a half months to succeed with mine!!

and some 20 months later, I'm all good


Say again s l o w l y
3rd Dec 2010, 23:59
Right. it's been a while, so can we have status reports from everyone please.

There are a few peeps that I haven't heard from recently, so it'd be good to hear how you are getting on.

4th Dec 2010, 17:55
Hi everyone, logging in as requested by SAS. I've a few more days in the sun here in Florida topping up the vitamin D before heading back to the Royal Marsden for more of the same (I hope). Could be worse, though my weight has dropped to a skeletal 9 stone 4:sad: Still feel quite well though the side-affects from the drugs and weight loss are a bit alarming. I'm still positive.

4th Dec 2010, 22:24
If lung cancer is Premiership, then early diagnosed bladder cancer is Conference League, South Division. Thus as a former bladder cancer sufferer I feel a bit of a fraud even posting on here. Still good news about cancer is always worth sharing. Almost six years after I started peeing blood and had a largish tumour removed I am still all clear. All cystoscopies have revealed no return of the problem, and my urologist only wants to see me once a year (oh joy!). I should say I had all the chemo/radiotherapy offered - I've been left with peripheral neuropathy (numb feet to you and me) by the chemo, but thats a whole lot better than the alternative!

My very best wishes to all on here still undergoing treatment.

5th Dec 2010, 06:51
It's not the premier league that kills you as a rule, it's the secondary metastatic isn't it? Nothing fraudulent about any cancer and no one is nicer or worse than the other. I believe brain cancer is pretty painless though but I ain't going to let that be my flavour of the month. But it is a disease and not a death sentence although it is not always commutable of course.
If you've had bladder cancer I think I am correct in saying that you should have had a chest X ray on initial diagnosis to check that the cancer had not manifested itself in the lungs as the traditional cannonball effect. My kidney cancer, as a TCC, was actually bladder cancer in the wrong place which is why my cystoscopys have to be carried out to a bladder cancer protocol.
As an ex smoker whose lungs show signs of smoking stopped thirty years ago, I still have an occasional chest X ray to just make sure I catch anything early enough to do something about it. A chest X ray in Johannesburg will cost you £30 and there's enough TB floating around so that it's not a bad idea to have one done every now and then anyway.
Glad to hear that all came right with you. They're not nice, these little procedures and the lead ups to them are always a slightly stressed time.

5th Dec 2010, 10:15
As an ex smoker whose lungs show signs of smoking stopped thirty years ago, I still have an occasional chest X ray to just make sure I catch anything early enough to do something about it.

Thanks for the response.My own fairly moderate smoking only stopped 15 years ago, so I ought if anything be more vigilant than you. I think I'll see about that X Ray, although I fear it's going to set me back rather more than £30 unless I can swing it on the NHS.

5th Dec 2010, 15:16
I don't think that after fifteen years there's any need to worry. I still enjoy the occasional cigar and was only spooked into having an X ray the other day in order to see if anything had developed in the interim between the initial X ray taken just after the cancer diagnosis a year ago and now. It hadn't so that's fine. I am in the process of not becoming a hypochondriac after the travails of the last year or so which have also included a small bout of sun induced skin cancer so don't be panicked by me.
For what it is worth though, to smokers who may read this thread, my younger son who is twenty eight, had a routine chest X ray the other day. He thinks he doesn't smoke a lot and always uses self roll jobs. The specialist physician was at great pains to point out exactly the demonstrable effects that even this smoking history was having on his lungs. The damage was quite evident. Of course the young idiot came straight out and rolled up in the hospital car park.

5th Dec 2010, 15:55
a_a: delighted that such a speedy recovery was made. Was that a da Vinci procedure?

Yes, it was. My man Mr Rick Popert does 50 a year, and Guy's does 200 or more. In my case it was a very straightforward decision to have surgery as all bar one of my ten biopsy samples had Ca, and about 70% of all cells seen on those nine were tumourous. It was suggested that it's been around for about five or six years - I first had what I now know to be symptoms about four years ago. On that basis it may well have reached the advanced stage in less than five years, by which time I will still only be 55.

5th Dec 2010, 16:04
Thank you for the contacts. I'll file them away in the hope never to use folder.
I had had a look at the London Prostate Clinic which seems fine if very expensive. Treatment there would also involve a ten day stay in London which has its own expense gradient to take into consideration.
The da Vinci machine seems absolutely the way to go for ease of operation as far as the patient is concerned although I am not sure that there's anything wrong with a radical in hands or fingers of a good and practised surgeon. In SA Brachytherapy is all the rage but at the youthful age of fifty it seems to me, from the little I know, that da Vinci knows best.

Loose rivets
5th Dec 2010, 16:43
I have a feeling, no more, that Brachytherapy will become the favored treatment world-wide.

The da Vinci machine is after all, just a way of making the driver's movements more precise. It can't make decisions in its own right, where to some small extent, this is what radiation does - given some rouge cells are more susceptible to radiation than the majority of healthy cells. Note my caution.

It seems a lot of countries are swinging towards the implants, and this will give us meaningful statistics within 10, if not five years. Even now, there is quite a lot of data for the 5 year survival rate.

The advances have been largely due to better mapping out of the troubled area - focusing tightly onto the significant clusters. Everything is much more precise now, for example, every order of the radio iodine 125 (often from Canada) is tailored to a specific patient, and the seeds are discarded if the operation has to be postponed.

It's bad enough slowing down with old age, but the thought of losing that natural drive, a drive that alters my total mind-set, is something I fear more than a little. Brachytherapy has left me with a sufficient residue of bloke-hormones to at least feel I'm essentially the same being.

5th Dec 2010, 17:00
I have a feeling, no more, that Brachytherapy will become the favored treatment world-wide.

My surgeon does about as many brachytherapy treatments as he does prostatectomies, but he did not offer me brachytherapy.

Contra-indicators in my case were Gleason score (six or less is desirable, I am 7 (4+3)) and the high volume of Ca cells in my normal-sized prostate, which I think means that there's not enough space for the number of seeds needed to deliver the required dose.

It will only become more common if more men are diagnosed earlier, is my guess. It's of no use to men with advanced PCa.

5th Dec 2010, 17:21
I think that therein lies the point. Brachytherapy is surely not a substitute for surgery but an alternative treatment for prostate cancer which is not suitable for all cases.

5th Dec 2010, 21:51
In my case, if I had Brachytherapy Procedure, I would be a 'dead man walking' now.

It was 'luck of the Gods' that I was ineligible for Brachytherapy and had only Radical Prostatectomy left for me because as a Gleason (3+3)= 6 and a T1c the Ca was 'supposed' to be still inside the Prostate.

When undertaking Open Surgery, it was found that the Ca has spread outside the Prostate.

Period Biopsy to Surgery = 6 months


10th Dec 2010, 00:55
Three monthly check up today. Ops normal on the nh lymphoma front although my haemaglobin was 'up' and 'above the normal range.' They weren't worried and told me not to be.

Say again s l o w l y
10th Dec 2010, 01:37
Nice to hear from you chaps. Particularly you Lucky, I was starting to get a bit concerned if I'm totally honest.

Good luck for the rest of the treatment. I take it that the trial is having an effect? Not just on your weight of course! Enjoy the sun!

Mats, don't worry too much about a slightly elevated haemaglobin count. It's not a lymphoma marker. If anything, it's probably because you were a bit dehydrated or something similar. Have you been up at altitude for a decent period of time recently?

All the best all!

15th Dec 2010, 03:46
Now I really feel like an imposter. Had the lump on my jaw removed in a Bangkok hospital, and just got the histology report - negative, not malignant.

Great news for me, but thanks to all you guys for helping me face a difficult situation.

Good luck everyone.

Say again s l o w l y
15th Dec 2010, 09:52
Don't feel like an imposter. Feel glad! That's excellent news.

15th Dec 2010, 11:50
always nice to have some good news stickyb, a lovely Xmas present for you.

SAS, I'm doing OK thankyou. I am so fortunate to have been allowed on this medical trial, somewhat aptly for me, named the Hope Trial. Some have left the trial or had to reduce the dose due to the side-effects but my body is tolerating relatively well even if I've lost a quarter of my body weight in nine months. The bi-monthly scans show the efficacy of the drug and the only cancer growth was when I was stopped due to infection. Many parameters that are measured at each visit so every scan result is awaited with some trepidation, perhaps that's why the trial is so named.:ok:

Happy Xmas everyone and may your New Year bring bountiful happiness and joy.

Say again s l o w l y
15th Dec 2010, 13:50
Side effects are of course horrid, but I'm really glad that they've managed to at least get a hold on it. Long may it remain as such.

Happy Christmas and fingers crossed that the new year will be a good one for you and everyone who's dealing with cancer, both directly and indirectly.

15th Dec 2010, 16:09
Thanks SAS:ok: All I need for Xmas is our engine fixed so we can go flying!

Say again s l o w l y
25th Dec 2010, 01:12
Happy Christmas all and may 2011 bring you everything you need and more imprtantly, everything you want!

1st Jan 2011, 10:08
Happy New Year everyone, may it be a good one for all.:ok:

1st Jan 2011, 11:46
Happy NY all.

Next scoping at the end of the month - fingers crossed the bugger hasn't returned - that's all I really want for this year.


20th Jan 2011, 10:18
My father-in-law was told on New Year's Eve that he has a malignant tumour covering his pancreatic duct.

I went with him to see the consultant at Kings College Hospital yesterday and he is going to have to undergo a Whipple procedure which is a major op.

I've looked it up Pancreaticoduodenectomy - Wikipedia, the free encyclopedia (http://en.wikipedia.org/wiki/Pancreaticoduodenectomy) and the consultant was helpful with questions etc but was just wondering if anyone else here has gone through the procedure?

Anyone got any tips? My father-in-law was knocked sideways when he heard the word cancer when he was initially told and forgot all the conversation thereafter.

That was why I went along with him yesterday, he's still emotionally shaky about the whole thing.

I'm trying to get him to look on the bright side -- for example the cancer has been caught early and is unlikely to have spread. Also Kings is one of the major hospitals in the country for this operation.

A year ago I underwent a quintuple bypass so I've been able to help him with advice re the effects of anasthesia et al, but if anyone has any bright ideas about how I can help him -- both before and after the operation -- I'd be very grateful to hear them.

Cheers to all.

20th Jan 2011, 11:08
An acquaintance had this done in Girona (Spain) about five years ago. Very uncomfortable and very painful afterwards but it was a success. A year or so later he developed a minor tumour in the same general area which was removed with no problem.

He attributed the development of the tumours to his previous life-style: merchant seaman, heavy smoker of coarse tobacco, heavy drinker of spirits.

Have now lost contact with him but I know he is still alive and travelling around Europe. Still smoking, too.

Say again s l o w l y
20th Jan 2011, 11:34
Angels, please pass on my best to your FiL.

I can certainly understand what happens when your brain shuts down after the Doc tells you what you've got.

I don't know anything about this particular cancer or the treatment, but he's going to the best place. He's going to be a bit shaky, but don't pander to it too much. He needs to get his fighting pants on. It's not that it'll make a difference to the success of the op, but his recovery and mental state will benefit from a bit of "fight."

Fingers crossed for him and for all of you as you support him through this.

A bit of news from me too. I'm starting with bmi on Monday. Not as a pilot, but as a Business Analyst, which I cannot wait to get stuck into! Having finished off a masters in Air Transport Management after all the cancer shenanigans, I'm really excited about it all!

20th Jan 2011, 11:41
Thanks OFSO.

Wonderful news SaS, wonderful. :ok:

DX Wombat
20th Jan 2011, 11:57
That's wonderful news SaS. :D

20th Jan 2011, 12:06
That's fantastic news Sassy. Well done you. :ok:

Say again s l o w l y
20th Jan 2011, 12:21
Thanks all! I'm off shopping for a couple of new suits and I'll be dropping into the Aprilia dealer too...

I'm after one of these:


or one of these:


I might also get a pair of carbon kevlar trousers for when Ali finds out and kicks me in the arse!

20th Jan 2011, 12:47
Fantastic news, SAS. All the best with your new kevlar troose!

DX Wombat
20th Jan 2011, 13:10
I might also get a pair of carbon kevlar trousers for when Ali finds out and kicks me in the arse! Full suit of armour might be more effective SaS, but those trousers will be good protection for biking use. :ok:

20th Jan 2011, 13:14
Good news SAS. There seems to be only one seat on those bikes where is Ali going to sit?

Say again s l o w l y
20th Jan 2011, 14:58
Ali will be sitting at home, as far away from noisy motorcycles as possible!

21st Jan 2011, 11:35
well I don't know if it has been told here before, but as long as I have reviewed this thread no one has talked about herbal products and treatments. The other day I just read something about papaya leaves and their remarkable curing reslults of cancer. the discussion was talking about boilling papaya leaves and drinking the boiled water and disspearance of cancer. Well I don't know how real and effective it is, but I though puting it here would be a point and see what others think or have heard about it or practices it.

7th Feb 2011, 05:16

I've just heard a good friend has cancer of the lining of the uterus. Nothing I can do to help from so far away, I'm just angry for her sake. :mad: cancer.

I'm sick & tired of cancer attacking friends, family, acquaintances. So many people I know, and have come to know. I hope that I'm hearing about it more because medical technology means that it can be detected sooner and nailed sooner.

I took some passengers away recently - a short break for the family as Mrs has terminal cancer. They have an 11 year old son. They were all so happy, having fun, not looking too far into the future but enjoying the precious moments together.

Less than 24hrs after we get back, and I get the shitty news about my friend. I wish I could do more to help her. Bleurgh.

SAS - thank you for starting this thread all those years ago. It comes in handy sometimes.

Say again s l o w l y
7th Feb 2011, 20:40
Fingers crossed for your friend Ferny. Cancer is indeed something to be despised.

7th Feb 2011, 23:50

Shortly after my wife went through several months of chemo, radiation therapy and radical surgery for cervical cancer, my sister was diagnosed with cancer of the uterus.

My sister's treatment was effectively three* days in hospital for keyhole surgery and back to work within two weeks. (*She had an extra day in hospital because they found she was diabetic and she had to wait for a specialist to come and talk to her about future treatment.) 12 months on, it appears the treatment was successful.

Without trying to downplay the dangers of uterine cancer, I hope your friend's experience will be more like my sister's than my wife's.

8th Feb 2011, 03:24
CoodaShooda & SAS

Thank you for your kind words. I just needed to let off steam. I hope both your wife & sister stay well and healthy.

9th Feb 2011, 20:44
Evening all,

6 weeks ago applying left right and centre for my first flying job having achieved my fATPL at the grand age of 36 with a young family.

Now one mini craniotomy later the biopsy comes back saying I have a grade 2 glioma aka. low grade malignant brain tumour and I'm booked in to see the radiologist/oncologist a week tomorrow.

As the thread simply says, b*gger.

Class 1 medical suspended, driving licence suspended on medical grounds, proper work as a police officer suspended and put on light duties. To say life has been turned upside down would be a huge understatement.

Ah well, the only way is up,

VFR aka Rich

Say again s l o w l y
9th Feb 2011, 21:15
B*gger indeed.

All the best Rich and if you need anything, just ask.

Good luck with everything and let us know how it goes.

Edit to add:

I've just had a call from a good mate. He had a fit the other week and has been in for tests. The doc has just told him that he has an inoperable malignant tumour in one of his frontal lobes...

F*cksticks. His son has just turned one and everything was going brilliantly for him. We won't find out exactly what it is or the proper prognosis until Friday, but I'm completely stunned and really not very happy.

FiL is away, so I can't even bother him to talk about this and I'm down at LHR working, so I can't go with him to help translate Doc speak into normal.

I feel so bloody useless.

I really, really hate cancer. Even more than I did before and I didn't think that was possible.

9th Feb 2011, 22:09
I feel so bloody useless.

I really, really hate cancer. Even more than I did before and I didn't think that was possible.

SAS - Sorry to read your news. At least you have done something positive to help those ppruners who experience cancer in some way. This thread is a real source of support. Its not going to solve everyone's cancer issues, but if you manage to show even half the strength and support that you have done on here, you will be a great friend to your friend.

Rich/VFR - all the best with dealing with your experience. I hope you get good news next week.

15th Feb 2011, 12:02
My consultant and his mates had a good look at my prostate, now safely in a jar, and reckon they have taken out all the nasty cells. Margins were good, and my PSA test was <0.03, so I have no escaped cells producing PSA elsewhere. Three more over the next eleven months and I should be in the clear.

I was running four weeks after my operation, racing XC at seven weeks, and again at eleven weeks.

I was continent from day six when the catheter came out, and am now having fun working out doses of Cialis and Caverject to make JT stand to attention when on parade. It may get better if/once the severed/excised nerves re-generate.

I'm also now seriously engaged with my local PCT to help them force the Churchill Hospital's urology into improving its very low level of performance against targets - I had a two hour meeting with a board member and her team last week - and despite the fact that I have less than a year of NHS experience, I seemed to be telling them lots of things that they didn't know much about or hadn't ever thought about, which was both odd and rewarding.

I'm on Radio Oxford at 11.30 on 1st March talking about prostate cancer awareness month (http://www.prostate-cancer.org.uk/get-involved/event/pcam), I'm running a stand in my local town to tell anyone who will listen about it, and on and I'm doing the Bath Half-Marathon at sixteen weeks post-op. Generous Ppruners may like to sponsor me (http://www.justgiving.com/simonlord)?

15th Feb 2011, 12:57
An update on my father-in-law who had a Whipple procedure yesterday to remove a cancerous tumour from his pancreatic duct.

The op has been successful per se, with some 20 pounds of material removed :eek::eek: Before the op we were told his prognosis was good. We will hear about that later.

He is talking groggily but will have another week or so in hospital The surgeon explained before the op that the most complicated part is 'plumbing everything back in' so we have to wait to see if he's got any leaks!

Gutted for your mate SaS.

Say again s l o w l y
15th Feb 2011, 20:06
Well done A_A!

I'm glad to hear your father in law is doing well, but 20lbs... Blimey.

Wish him all the best from me and here's hoping that the surgeon is better than our last plumber...

glad rag
16th Feb 2011, 02:17
Airbourne-Respect for all you have done and are about to do!:D


16th Feb 2011, 12:33
I started having Zoladox implants every three months for prostate cancer some 2½ years ago. My PSA count dropped from 300 or so to <0.01 in a year. It has been like that for 18 months now and I asked my doctor to contact the hospital to see if I still required to have the implants at the same rate. The answer was non committal and was basically ‘keep taking the tablets’. I have read on this thread about people resuming a normal life with counts of 0.1 so do you think they are being a bit over cautious?

22nd Feb 2011, 11:27
A few days ago my ex-fiancee left this earth for a far better place, she became 28 years old. She was diagnosed with CML (Chronic Myelogenous Leukemia) in 2006. Two weeks after our engagement, in June last year, her disease had gone into an accelerated phase, a week later into blast crisis. It was a privilege to follow her through the disease and I learnt a lot about the disease and life itself. Unfortunately the relationship took some unexpected turns and during the autumn she broke the engagement. It was the hardest time and we haven't spoken much since. Through her family I was informed despite her brave fight against the disease, including an allogenic Stemcell Transplant from a her brother, she finally had to give up.

Rest in peace Lilia (http://i307.photobucket.com/albums/nn287/patrikcertain/Best%20of%20times/IMG_Lilia_PussycatPetSiters.png) ♥

I am sorry to spread bad news and I don't want to frighten anyone in a similar position, but I think it's important to honor those who've fought or is currently fighting this terrible disease, regardless of form or shape.

22nd Feb 2011, 11:58
I am sorry to spread bad news and I don't want to frighten anyone in a similar position, but I think it's important to honor those who've fought or is currently fighting this terrible disease, regardless of form or shape.

You're so right. Sorry to hear about your loss. A friend of mine has just been diagnosed with CML. She's very confident that she can beat it but having read around the subject I'm not that confident in her long term prognosis but am certainly not going to shake her faith. I hope I'm wrong.

RIP Lilia. 28 was far too young.

22nd Feb 2011, 12:20
My sincere condolences 172.

I think all the folk that read/contribute to this thread know that there will be sadness and grief here alongside happiness and delight. This is the nature of the Beast I'm afraid.

My father-in-law is going okay, but some of the internal plumbing needs to be repaired and it seems his pancreas is not operating exactly as it should be at the moment so he has to remain in hospital.

Still, it's the best place for him at the moment.

22nd Feb 2011, 13:01
Fareastdriver....my case is somewhat similar to yours; I was diagnosed with advanced prostate cancer in March 2007, and have been on a regime of 3 monthly Zoladex implants plus a daily Bicalutamide pill since then. I also had IMRT at the Royal Marsden as part of their trial. My PSA stabilised at 0.17, and all treatment has now been discontinued. Whether or not I'm "cured" will take a few more years to become fully apparent, but Prof. Dearnaley and his crew are quietly optimistic that this is the case. They have also said that there is a possibility that I might need to resume treatment and continue it indefinitely, so it appears that both of us may be getting the correct treatment!!

Good luck....JD

22nd Feb 2011, 13:30
Molemot and fareast Driver , can I thank you for sharing your storiues.

From what I can gather you both have had a similar prognosis and treatment regime to my father.

Somewhere I had gotten the idea that eventually the implants would stop working and the inevitable would happen.

To think that there might be a time when he could even stop the treatment at least has given me hope

Thank you

22nd Feb 2011, 13:48
172, condolences, I can't begin to imagine how you must be feeling. RIP Lillia.

22nd Feb 2011, 18:01
Muppetbum...in my case, the "cure" part of it would be the IMRT... intensity modulated radio therapy. They used the medication to shrink the prostate before giving me a whole bunch of very carefully targetted radiation over a 4 week, 20 day, period. Had some minor side effects but nothing to be concerned about; now, all is so normal that I've pretty much forgotten there's anything wrong! It's the combination of treatments which does the magic, so it seems; with just the implants, you are sadly correct, they can stop working after a few years...but things move so fast these days that surviving a few years means that you may well be able to benefit from the next treatment down the line! Good luck to everyone in this battle....whether as participant or support....cancer is getting ever closer to being just another chronic condition like bronchitis...something that's a bit of a nuisance but not fatal anymore.

172 Driver....a tragic tale. Words aren't enough.

22nd Feb 2011, 18:18

I am very sad to hear the news that Lilia has lost her battle with CML. From your posts here I know that you have both put up the best fight possible.


There are two types of CML. One is the myelogenous version which seems to be the worst of the two. The other is myeloid which is the one I am personally more familiar with and for which there are several treatments available. For most myeloid sufferers, one of the treatments available offer the possibility of a long, normal life. If this is the one your friend has I am very happy to link her to the many people like myself who are available for advice and support. PM me if you want.

Say again s l o w l y
22nd Feb 2011, 20:54
I'm really to sorry to hear that 172, you have my condolences.

Handsfree, all the best to your friend. I do have a fair few good news stories about CML, so it can be beaten.

22nd Feb 2011, 22:26
Sorry if I sounded so negative SAS. The TK inhibitors such a Gleevec have certainly changed the potential future for those who respond to the drug. It's very early days in her treatment so there is certainly hope there.

Yours and pulse1's support is very gratefully appreciated.

pulse1, I shall have a word with her.

22nd Feb 2011, 22:56
Thank you for the thoughts, it always feels good when you can "write off" your grief. It's a pain reliever.

Handsfree, depending on the stage of your friend's CML (and a bit of luck) there may be very good hope for her. I believe CML is one of very few types of cancer which is fully understood on a more genetic level and medicines exist to hold the disease back. Stemcell transplant has the possibility of curing the disease completely. A transplant is better done in early stages but TKI is first line treatment today. A transplant always comes with risk factors.

Lilia's disease progressed quickly into blast crisis and was very hard to control. With Tyrosine Kinase Inhibitors (TKI) they could stabilise her condition and make her ready for the SCT. She was feeling good and out of the hopsital after I heard, but died a few months later.

Say again s l o w l y
22nd Feb 2011, 23:37
Don't worry handsfree, I know quite a few people who went through similar treatment to me, especially the stem cell transplant, who had CML. I won't lie and say that they all made it, but more are here today than aren't and that's always a good start.

It's certainly not the death sentence that it was even just a few years ago.

One thing though, if you've been looking up stats on the internet and trying to guage chances based on them, stop it now and forget what you read. Cancer stats are invariably irrelevant in that form to the individual. Especially when treatments are moving so fast.
Knowing what the 5 year survival rate was 10 years ago, means nothing now to a patient's chances, especially when there are so many other factors that also need to be taken into account to give a mildly accurate prognosis.
Leave that to the docs, all you can do is to support your friend and NEVER let on that you believe the fight is already lost. (I don't need to tell you that though.)

She's got a fight on her hands and I won't pretend that the treatment isn't horrid, but she can come through this. I'll be going to a friend's wedding soon who I first met on the ward after he was diagnosed with CML. It took 2 and a bit years, but he's back to normal now and he's by no means the only one.

cockney steve
23rd Feb 2011, 19:06
Having been on my own and celibate for ~ 10 years, i was happy to "hookup" with a long-time resident of the same road, who had been bereaved suddenly ,about 8 years previously.

A bout of "honeymoon cystitis" was quickly dealt with, but some months later, a sore appeared on her Vulva (outer lips of the Vagina )

After a week of GP treatment, she was referred to Oldham ,to see Mr Ali, the consultant gynae. a few days later, she was admitted for the day,culminating in a visit to Theatre for a biopsy.
Mr. Ali advised that he had carried out rather more than a biopsy, was certain that it was malignant and confident that he'd got it all.

A few days later , a referral to St. Mary's Manchester, Consultant Cath Holland.
My Girlfriend (can I call her that, at 63 ;) ) was offered one of only 20-30 places on a trial-program.
It was explained that Lymph-Nodes are akin to small strings of onions,placed around a loop...the cancer will travel down the string to the loop,thence to the rest of the body.

normal treatment would be to take away a large chunk of her "lady-bits" and the complete Lymph Gland on the affected side.....this could lead to swollen and ulcerated legs,difficulty walking, infected and poorly-healing wounds etc.

The proposed treatment was to remove a further amount of tissue from the Vulva, and just the first, "sentinel" node from the gland....should this be infected, the whole gland would be subject to radio / chemo therapies as would the affected organ...however, if the cancer had not hit the Sentinel, then the whole of the rest of the Lymph -system could be presumed to be clear....Such was the case...Mr Ali had removed all the malignant tissue at the first attempt......in retrospect, the second two operations were superfluous,but without them we wouldn't have known.

Life is back to normal again , though we go back every 2 months for a progress-check.

Shortly before Christmas, I heard that a friend living in Scotland, a brilliant Chartered-engineer, has a brain-tumour....though he had an operation, it was not successful. His time is very limited, he is on steroids to reduce the pressure within his brain, but this has made him bloated. there are other side-effects and he has become a virtual recluse.

Pretty sure that if the family hadn't handed in his guns, he'd have made a quick exit. He doesn't fear death,being a very Spiritual sort of guy, he believes in an afterlife,but like me, does not believe in the loving, caring God that the organised religions peddle. he just "knows" there's "something" superior to the humans.

So, current status, have still got a special Lady, am losing a special friend.

1st Mar 2011, 21:15
Here's my wee small effort to improve awareness of prostate cancer:


On Radio Oxford this morning - luckily I have a great face for radio :E

2nd Mar 2011, 06:42
A round of applause for airborne artist (and Alice)!


John Hill
2nd Mar 2011, 09:29
It is coming up 6 years since my diagnosis with prostate cancer, I had hormone therapy and external beam radiation and all seems well.

Since then I have met a number of men who have had experiences much different to mine and some are no longer with us so I heartily applaud Airborne_artist and anyone else working to raise awareness of prostate cancer.

Some people think prostate cancer is a 'lucky' cancer to have as effective treatment is generally available. But that only for the ones that are found in time.....:(

Say again s l o w l y
2nd Mar 2011, 19:34
a_a, well done! Do you have a just giving page or something like that for someone to make a donation? You were very good on the radio by the way. Have you had media training in the past?

CS, sorry to hear about your friend. I'm still waiting to hear about my friend with the brain tumour too. The surgeon has been away so things have been held up a bit, but hopefully they'll be meeting on Friday.

Of course you can call her your girlfriend! I think we all regress by 50% of our age when we start a new realtionship, so you're both only 31 1/2!

John, It's funny to think of any cancer as "lucky" but it's odd how we can rationalise these things. I consider myself to be lucky with what I had, even though it was a nasty old experience, it could have been a whole lot worse.

I hope everyone else is doing well.

2nd Mar 2011, 21:46
Cockney Steve, of course she is your girlfriend. Good grief, after what you two are likely to go through together, she'll be much more than that in emotional terms.
So sad to hear about your friend with the brain tumour.

SAS (and others), friend with the CML is currently bog hopping around the Isle Of Arran. Last heard is responding well to the drugs regimen. Fingers crossed.

airborne_a and alice, no words can describe my admiration. :ok::ok:

2nd Mar 2011, 21:46
a_a, well done! Do you have a just giving page or something like that for someone to make a donation? You were very good on the radio by the way. Have you had media training in the past?

Thank you for your kind words - not a scrap of media training, I'm afraid, so I've no idea why it was good (or how I could improve further), as that's just how the words fall out of my mouth. I really enjoyed it though - that slot was budgeted at 7-8 mins, but the presenter and his producer let it run over by 50% as they said it was good stuff. It was my second trip to Radio Oxford, so I was a bit more relaxed, and I can hear myself relaxing further after a couple of minutes on that session.

My JG page is here (http://www.justgiving.com/simonlord) :ok:

The 30th March is the charity's "Day of Action", so I'm now trying to get on Jeremy Vine, R4 Today and BBC Breakfast TV on that day. Never let it be said that I don't aim high :}

Say again s l o w l y
2nd Mar 2011, 22:24
I happen to know a couple of producers at R4, I'll have a word and see what they can do.

Oh and there's a little something in your justgiving account to help you run a bit faster!

2nd Mar 2011, 22:32
Oh and there's a little something in your justgiving account to help you run a bit faster!

Very kind indeed :)

I happen to know a couple of producers at R4, I'll have a word and see what they can do.

Now that would be amazing - beers would flow if you could help fix that :D

10th Mar 2011, 15:28
Heard from the friend with CML. She is responding well to the TKI but could do without the side effects. She's currently spending some weeks on Arran, walking eating and drinking with the new man in her life, he happens to be a retired GP, so she's in good hands. Thanks for the reassuring from all.

On a down note, discovered that an old friend died yesterday of a recurrent breast cancer. Came as a bolt out of the blue as I didn't know she had relapsed.

Thoughts go out to all coping with this awful disease in all it's variants.

22nd Mar 2011, 17:52
Dad's PSA up one point to 2.1 :* hoping its just a glitch rather than a sign the hormones have stopped working

22nd Mar 2011, 22:46
From what I remember talking to a friend who has been treated for prostate cancer there is a PSA bounce 1 to 3 years into the treatment before the PSA declines to it's 'nadir' level. I think he went through the same levels changes as your father.

I'm sure there are folk on this thread with a much better understanding than I but from what I understand upward excursions of the PSA level are not necessarily an indication of treatment failure.

Hope this helped.

Edited: Found a link

Prostate cancer and its treatment by external beam radiotherapy (http://www.prostate-cancer-radiotherapy.org.uk/psa_bounce.htm)

23rd Mar 2011, 13:08
Thanks , that kind of ties in , he's about 2 years into his treatment.

I think I'm just concerned because I keep seeing all these links about radiation treatment etc. Dad has had none of that , just the hormaone treatment and I don't understand why.

There's probably a good reason , but he doesn't talk to me about it other than to say " I feel fine". I suspect he doesn't want to know to be honest. He just wants to get on with life. I understand that but I need more information :(

its tough as well as I can't really speak to my husband about this. He's lost grandparents recently and we both lost a dear friend last year. Whenever I talk about my dad , he starts thinking about these people again.

At the moment I can't cope with his grief as well as my own , does that make me a bad person?

24th Mar 2011, 10:58
Dismay here as I've been suspended from the medical trial due to my weight loss. All the more galling as I had managed to put a kilo on recently from my lowest point. Have you noticed how we are surrounded by ads for weight-loss solutions?:mad:

Say again s l o w l y
24th Mar 2011, 22:23
Sorry to hear that Lucky, will they let you back on if you put on more weight? Apart from this problem, how's the trial been going?

25th Mar 2011, 08:01
Hi SAS, I had the news by telephone and will sort it out at Wednesday appointment but I am hopeful that it will not be for too long as my cancers showed marked growth when I was suspended previously for a month due to infection. The trial is rated a success I'm told and happily that seems to be correct for me as the drug effectively halts the cancer growth, no decrease apparent that's too much too hope for. The trial has moved to phase 3 which means that 50% of those get the drug and 50% get a placebo.:eek: I am happy not to be in that group. The side effects include fatigue, weight loss, dry mouth aching joints etc. but the saddest one is that I cannot tolerate ale or fine wine.

Say again s l o w l y
25th Mar 2011, 22:10
No decent booze... Now that's just not fair. I remember something similar on chemo and it wasn't much fun. Here's hoping that goes away soon.

Fingers crossed you get back on and end up without the proper stuff, not the placebo.

All the best mate.

5th Apr 2011, 12:19
Further to Posts 1878, 1879, 1880, 1964 and 2058, I add:

Radical Prostatectomy

Update 5 April 2011.

Visited the Urologist Dr John Miller today for what turned out to be my final visit for the Radical Prostatectomy undertaken 102 weeks ago on 21 April 2009 by him.

He said that my recovery is as complete as it will be and he sees no reason to continue unless there is an urology matter that might arise in the future.

PSA reading was “less than 0.03” which Dr Miller suggests in next to NIL present.

Mike McInerney
5 April 2011

5th Apr 2011, 13:15
That's Awesome news Mike . Congrats on beating it :D

5th Apr 2011, 13:37
muppetbum - in answer to your earlier question, you are not a bad person. You're human. Hope you feel a little better now. :ok:

mmciau - Ping, another winner on this amazing thread. Congratulations.

Further news on my father-in-law who had a Whipple's procedure to remove a cancerous polyp on his pancreatic duct a month or so ago.

He had his first ale last week and is eating well. He needs chemotherapy once a week for at least six months and if all remains clear then he has seen it off totally according to the oncologist.

He has been very lucky thus far.

Say again s l o w l y
5th Apr 2011, 21:23
Mike, excellent news!

Angels, that great to hear.

A bit of good news from my end. My friend who we originally thought had an inoperable malignant tumour, has just had the surgery to remove it. It turns out that it wasn't as bad as first thought and that it looks as if the surgeon has got it all out and he's in recovery now.

He's talking normally, remembers everything and has full mobility and feel, so fingers crossed he's come through without any issues. He's still in the high dependancy unit, but he's already eating and will probably be moved to a normal ward tomorrow.


5th Apr 2011, 23:04
Great news from you SAS


6th Apr 2011, 07:58
Always lovely to hear good news,. Excellent :ok:

10th May 2011, 21:40
Great news Mike. I had my second post-op PSA test last week at 26 weeks, and that also came back at <0.03, just like the first.

Looks like all the naughty cells are in that jar. :ok:

10th May 2011, 23:06
I'm back on the medical trial.:ok:hoobloodyray:ok: Stopped due to weight loss of over 3 stone. I did have to drink a lot of water for the last weigh/blood check/scan apptmnt to make the weight. Ha! Who cares, the A/C is serviceable again and we can fly. Enjoy what you can while you can.

Have fun and
Best wishes everyone.

Say again s l o w l y
10th May 2011, 23:12

5th Jun 2011, 21:17
My turn for a biopsy tomorrow - a cyst on my right lower parathyroid gland. Only 5% are malignant and frankly I hope it's just liquid that can be sucked out, as it's causing mild intermittant pain, a week on, a week off, that sort of thing.

Then onto the dermatologist to have a group of cells scraped off my shoulder, but that's routine, get that every six months or so, somewhere on me they are always making whopee !

5th Jun 2011, 21:55

Good luck.

6th Jun 2011, 20:03
Thanks !

Funny how a day can change and anticipated problems disappear, while other things one didn't even know about come suddenly to the fore......

My first visit today was to the thyroid specialist in Girona: she listened to my symptoms, said "I don't think that's a cyst on the parathyroid gland (which does exist) giving problems or a thyroid problem because the symptoms for that are totally different", felt my thyroid, said "I can feel nothing at all" then felt the right saliva gland and said "but THAT'S swollen !" - maybe stones in the duct ? I said "none showed up on the scan" - she answered quite logically "maybe there were none there that day" - which I thought brilliant. But of course it leaves the matter up in the air.

My next visit was to the dermatologist in Girona for a raised patch on my shoulder: walked in off the street, was told to wait. After an hour the receptionist from their Figueras branch, a motherly lady, walked into the waiting room and gave me a hug and kiss on both cheeks, now that's so nice. Then, into the doctor's room...........

(here the opening theme from "Jaws" should be played)

....whom I know well, he regularly cuts nasty bits off the surface of my skin: he took one look at me and said "you've got a carcinoma* on your left ear which must come out RIGHT NOW THIS VERY INSTANT."

* squameous cell carcinoma, or SCC.

Straight into the operating room next door to his consulting room (I mean, at the double, clothes over one arm) and 45 minutes later, 14 stitches in my ear, and my pocket €500 lighter, I was all done. The tumour had penetrated the cartilage so some reshaping of the ear was necessary: he says it won't be noticeable when healed. The bits have been sent off for biopsy and stitches come out next Tuesday. No pain, not even now five hours afterwards. Maybe will come later.

Obviously I have to count on HIS advice that the surgery was necessary, but how nice to be able to see a specialist instantly and have the man drop everything and spend nearly an hour (with debriefing) on me while keeping other patients waiting.

Hug and double cheek kiss from the motherly receptionist "see you next week" and I was out on the street again.

POSTSCRIPT - a week later - went back to have stitches out (those in shoulder painless, those in ear were definitely not painless). Dermatologist looked at ear, muttered "that's fine, healed very well" and went off to next job.

Oh well, SCC's are like the number 46 bus; once one has gone they'll be another one along soon. Maybe I should ask the dermatologist for a bulk discount ?

2nd Jul 2011, 10:06
Some good news with the results from my latest scan:D Stable disease is the verdict then they tell me that three of the tumours have reduced in size over the course of the trial by over 10%! Less than 30% change is stable but a reduction is absolutely fantastic to me given the prognosis I'd received previously.

Good luck everybody.

Say again s l o w l y
2nd Jul 2011, 20:06

That's great news Lucky. I've been thinking about you recently and wondering how you were getting on, so thanks for letting us all know.

OFSO, sorry for not seeing your posts before, but I'm very glad to see you've been sorted out, even if it was for something completely different!

I hope all who are still having their battles with this b*stard disease (sorry Wholi, I can't be ars*d to come up with a less obvious way of swearing when talking about cancer!) are doing as well as possible.

If you need any adivce or just someone to talk crap to, then give me a shout. I'll help any way I can, as will hundreds of others on here.

7th Jul 2011, 09:12
While you were all hard at work on Monday I was with my mate Dan Sencier from Penrith on a small but significant demo outside the Cumberland Infirmary in Carlisle.

Dan was diagnosed with prostate cancer last year about the same time as me, and then left to flounder for four months by the hospital. They were slow to answer his complaints, did very little to make improvements to the services needed, and then threatened him with legal action when they saw his blog (http://danielsencier.********.com/) telling the truth about his experience. Dan then upped the ante by organising his demo which was covered by BBC and ITV local news, local radio and local papers.

The One Show picked up on his story and have made a piece on him that will go out tonight. I think some of my mumblings will also be in the piece.

I drove 560 miles round trip (and slept in my car in a lay-by) to support Dan, and another guy came even further, from Brighton.

7th Jul 2011, 10:46
I must make one comparison between treatment with private insurance and the National Health etc. when treating skin cancer (yes, it's a minor problem compared to what most posters on this thread have).

Because I pay privately and claim the cash back from the insurance (which may take some months to pay me my 90%, but that's another story) there are no delays in getting treatment. AS in NO delays, minutes from waiting room to seeing doctor (without an appointment, yet) and minutes to having skin growths removed. Biopsy takes about a week but that includes post to wherever the lab is and back. Dermatologist is very experienced, takes out everything he thinks is nasty, never yet been proved wrong by biopsy of surrounding area.

Yes, it's expensive, some might say very expensive, and I'm always left out of pocket, but this is me we are talking about. I don't want to wait weeks or months - in fact in the latter case 'something suspicious' could have progressed into 'something dangerous' and rapidly become "too late".

BTW - summer is here in Spain and all the pale blue northern tourists are on the beach tanning again. No comment !

Turbine D
14th Jul 2011, 01:45
On the news tonight, a small company has made huge strides in developing a cancer cure drug, free of side effects. The name of the company is Bexion Pharmaceutical located in Covington, KY, across the Ohio River from Cincinnati, OH. The CEO and Chairman of the Board has battled cancer, stage 4 non-Hodgkins lymphoma diagnosed in 1992. A bone marrow transplant save his life and at that time, the procedure was still experimental. In their office, they have a 'Wall of Inspiration" photos of people diagnosed with cancer. Sadly, two people have died who's photos are on the wall.
The good news is this small company has developed a drug called BXQ-350 that may be the perfect cure for cancer. They have tested it in mice for the most prevalent 8 forms of cancer that humans experience. It is effective in all 8 and in 13 days, two types of cancer were completely eliminated. They have tested it on 50 other forms of cancer that again included lung, breast and brain tumors, and all were cured. They have not found a cancer where it wasn't found to be effective.
BXQ-350 was discovered in 2002 by Dr. Xiaoyang Qi who was a genetic researcher working for Cincinnati Children's Hospital.This is part of University Hospital associated with the University of Cincinnati. It was an accidental discovery as some of the world's best discoveries have been. Dr. Qi has several family members in China battling cancer at the moment.
Several Oncologist have reviewed the data, results and drug strategy, concluding this is one of the most important discoveries seen so far. Obviously, the jump of the drug to human trials will determine the worth in the end.
The next step will be to get FDA approval to start human trials starting in the spring of 2012. It is believed this will take place at University Hospital in Cincinnati. Many other companies' once promising drugs fail this step. Lets pray that BXQ-350 doesn't fail, but passes with flying colors.
As a matter of interest, the oral Sabin vaccine for polio was developed at University Hospital which was then part of the University of Cincinnati.


Say again s l o w l y
14th Jul 2011, 07:52
Here's hoping that it proves a success.

14th Jul 2011, 08:36
Sounds like good news TD

Helping to balance the news making the headlines this side of the pond today.

BBC News - Health charity says four in 10 people will get cancer (http://www.bbc.co.uk/news/health-14140424)

Turbine D
14th Jul 2011, 22:49
Hi Beaufort1,

The new is not so good here in the States, either. Although some cancers show a drop in new diagnosed cases, some are sky rocketing. Skin cancers are way up, particularly the more deadly melanoma among younger people that was rare a few years ago.

I failed to mention how this new drug, BXQ-350 works. It works by turning the cancer against itself. It triggers a process that forces the cancer cells to commit suicide and that is why it is not toxic like most chemo drugs.


18th Sep 2011, 15:49
I posted this in February.

I started having Zoladox implants every three months for prostate cancer some 2½ years ago. My PSA count dropped from 300 or so to <0.01 in a year. It has been like that for 18 months now and I asked my doctor to contact the hospital to see if I still required to have the implants at the same rate. The answer was non committal and was basically ‘keep taking the tablets’. I have read on this thread about people resuming a normal life with counts of 0.1 so do you think they are being a bit over cautious?

I had a chat with by GP about it as to whether I could stop the implants to see what happened. He said that there was no law that said I had to have them so it was up to me. On the basis I stopped having them, my last being in December 2010. I had a PSA check in March and another one a week ago; both of them are still giving 0.01. We are both fairly happy with that so I will continue this trail with six monthly PSA checks.

I am aware that last week was only six months after the last inplant's effect would have worn off so it is no guarantee that I am out of the woods. I am also not suggesting anybody else tries it but we shall see how it goes.

I'll keep you posted.

18th Sep 2011, 23:05
Anyone know of a doctor who will listen?

Say again s l o w l y
19th Sep 2011, 08:14
Mine was pretty good. What are you trying to tell yours?

Fareastdriver, all the best for the future, here's hoping that darn PSA number stays low.

19th Sep 2011, 15:53
There are some strange people out there, my sister-in-law, a nurse who now runs a care business, recently came to stay and decided to take me to task. "You're dieing Ian, have you made sure that my sister is looked after and will be secure financially?" "You need to make sure that this is done soon and all is laid down in your will."

Say again s l o w l y
19th Sep 2011, 18:30
Well, we're all dying if you look at it in a certain way, but what an insensitive thing to say.

How is it all going lucky?

19th Sep 2011, 19:50
I'm on something of a roller-coaster ride here and always concerned they will take me off the trial, now they've decided that the bone scans show cancer too and they are going to review them all. The original tumours in my neck and lungs seem stable but a review of the bone scans could have me off the trial. I'm awaiting an OK for radiation therapy now from the medical trial honchos. I've no complaints the people treating me have been lovely, must buy them some more chocolates soon.

19th Sep 2011, 20:19
"You're dieing Ian, have you made sure that my sister is looked after and will be secure financially?" "You need to make sure that this is done soon and all is laid down in your will."

No SaS, she's right. If these things aren't said early on, then later, all manner of complications can arise. Reality.

DX Wombat
19th Sep 2011, 20:24
jindabyne - there are ways of saying these things and that doesn't sound as if it is one of them.

19th Sep 2011, 20:29
Was to my dad, and in turn to me (we both were afflicted, I'm still hanging in). As I said - reality.
Maybe I'm too up front, but things have to be dealt with? We both smiled, and sorted things out for those who were/are going to benefit :)

Say again s l o w l y
19th Sep 2011, 20:42
Lucky is no fool, so I'd be very surprised that he hasn't made provision. I know I did. My problem is that it is a very presumptious thing to say and could be easily handled in a far less direct manner.

There is a time for bluntness (and those who know me know that bluntness is one of my particularly strong character traits...) and a time to do things with a bit of tact and decorum.

19th Sep 2011, 21:19
I think we're getting too deep, and entering an altogether different sensitive area. Let's leave it?

NB: this should follow Wombat's post, but I can't make it do it for some reason

DX Wombat
19th Sep 2011, 21:20
Tact and sensitivity does not equal morbid it means kindness and consideration. It does not exclude clarity of the situation. I have had many years of having to deal with parents and relatives of dying babies. There are many whom I remember, one in particular illustrates what I am trying to convey to you. A baby was born prematurely, desperately ill, had several congenital malformations and survived only a few hours. The family was most concerned about what they should tell the older sibling. Tell her that he was born too early and very, very sick. She will understand that. There is no need to go into graphic detail the time for that will be when she is older and needs to know. The simple explanation was the best in that situation.

DX Wombat
19th Sep 2011, 22:49
You've been got by the time stamp fairy, Jindabyne. :}

20th Sep 2011, 20:56
Guess so. My wee grandson's coming tomorrow - he'll probably sort it!

4th Oct 2011, 20:52
Quick update from me, although I rarely get a chancer to read or post on what is arguably the most important topic on pprune.

My original post was 2166 which detailed my diagnosis of a brain tumour.

9 months on and the lesion is reported as stable with minimal symptoms. Indeed, you would be hard pressed to even know it was there. I was 9 months through the 12 needed to get my driving licence back, and with it the opportunity for a restricted nppl.

Given the circumstances things were looking okay considering the Biopsy in Feb said it was an astrocytoma for which there is no current cure. The lack of symptoms meant that we deferred the options of radiotherapy and surgery as the side effects were likely to be worse than the symptoms.

Last week, I started having seizures manifesting as 2 or 3 temporary sets of flashing lights and loss of peripheral vision per day. Saw the doc, medicine upped and next MRI scan and consultation booked in for a few weeks.

It's amazing how the ups and downs go, but I can only hope the stability and lack of growth continues. As an aside there are a lot of humbling stories here which can bring a tear to even my eyes.

Hope all are as well as can be. Our eyes are on the front of our heads because we are designed by nature to look forwards which I would say applies to attitudes as well.

Kind regards,

4th Oct 2011, 21:08
At age 64, I have lump on the right hand side of my throat, where the lymph gland is.

Hospital tomorrow, although last week, a thorough examination couldn't find any other swollen lymph glands - armpits, groin, or other side of throat. Or any swelling of liver or spleen. Still bloody worrying. I did get bitten to hell and back the other week by mosquitoes in the south of France so it could be an infection, and the lump seems to be getting smaller although it's hard to be sure.

Let's hope....

Say again s l o w l y
4th Oct 2011, 21:29
Lumps can be all sorts of things, just one of them is cancer. I've got a few lumps and bumps mysef that have nothing to do with lymphoma, so there are a few options, so don't worry too much.

VFR, all the best, we're all rooting for you. Fingers crossed that it's just a blip. I know a couple of people who have the same as you and they've lived with it for a long time, I remember one of them had issues like yours for a while, but in his case it was nothing too serious and was controlled with medication.

5th Oct 2011, 21:13

Hoping the hospital investigation all goes well. As SAS says, non cancerous lumps and bumps are common, but that doesn't alleviate the worry. Good luck and best wishes vfr.

SAS, thankyou for your support, very encouraging to know someone has had similar for a long time.

You never know when the breakthrough will come, but in the meantime enjoying life is the key.

Kind regards,

6th Oct 2011, 07:22
At age 55, my cousin recently had an uncomfortable swelling in his abdomen which had been there for sometime. His wife finally convinced him to go to the doctor and four (yes, 4) days later he died at home, leaving an unprepared family to look after the farm. His grandmother, mine also, died from bowel cancer despite early recognition and treatment. Changes to the body and it's habits should be recognised and professional counsel sought; the stakes are too high.

When it comes to lymphoma, there are several hundred lymph nodes scattered, and directly linked to each other, throughout the body. Purely as an interest, I once learnt a massage technique known as lymphatic drainage. I believe if you have been diagnosed as having lymphoma, you should avoid massage like the plague, and particularly this style, lest you assist it in spreading. My mother died of lymphoma but I dared not do anything fearing the same.

Today, I received news of a fit and healthy male friend, early fifties with no known medical conditions at all, who took his dog for a regular morning walk and collapsed and died on the street. His wife's mobile phone number was on the dog's tag but by the time she got there he had already passed away.

You never know...

6th Oct 2011, 16:13
Given the resources that Steve Jobs could throw at his pancreatic cancer, yet still losing, wonder what the chances are of any of us mere mortals surviving. Bit cynical on these issues, reckon more than a few "specialists" see patients as guinea pigs or as a contributors towards their next new Mercedes.

Had a brother-in-law die from lung cancer earlier this year. He was 70, and his last twelve months were horrific, what with radiology, chemotherapy and everything else they could throw at it. None of which had the slightest effect yet caused his remaining life to be hell. I will be only too happy to call it quits when my time comes without the ministrations of the medical professions, and still be lucid until the end time, which I shall choose.

Loose rivets
7th Oct 2011, 00:05
I think that, but wonder if I'll be able to.

I'm totally resolved at my age to not do great battle with cancer. Not allow anyone, let alone my kids, to have to look after me. Not suffer the indignities. But, it has to be the call of each individual.

We've just lost my counterpart grandfather. He'd worked late into his retirement. He'd got a good and loving family. He fought for 3 years and it was hell. The decision has to be based on one's deepest philosophies and theological beliefs. I just wonder what the soul is supposed to gain from 'Enduring to the end.' In truth, that Christian mandate is the only thing that worries me.

7th Oct 2011, 08:23
In truth, that Christian mandate is the only thing that worries me.

Far from being an expert but I am not aware of any "Christian mandate" which demands that you have to suffer the ministrations of modern medicine in an attempt to extend one's time in this life. If anything, I would have thought that the opposite is true.

Say again s l o w l y
7th Oct 2011, 08:36
Well, considering that suicide is seen as a mortal sin in much of the Christian faith, then it leads you to think that you've got to fight to the end, rather than make your own mind up on it. Is refusing treatment that might save your life actually suicide? One for the moral philosphers really, but I don't think it's as clear cut as saying that there isn't pressure on people to "do the right thing."

Personally I'd probably always go for the fight until the bitter end option, but that's just me being a belligerent sod who hates losing at anything, losing at life itself is not something I want to do.
Others have different opinions on the matter and no-one is really worng other than the people who want to tell others what to do for their own interests/beliefs.

I don't believe in giving up when thinking about treatment, but there does come a time in every person's treatment where you do ask yourself if it's worth it. I know I had it, in fact when the doc asked me one time if I'd have another round of chemo "to make sure" I told him to naff off. I'd just had enough.

At that time though, I knew deep down that the cancer had gone. I don't know how, but I just did, fortunately I was right, but I do wonder what my reaction would have been if I hadn't been so certain in my own mind.

11th Oct 2011, 11:22
In previous posts, I recorded - "Prostate Cancer - My Journey" on a site based in Australia. The site owner is closing down the site and recommended that an alternative site be used to record various persons' experiences.

That site recommended is as set out below.

Prostatakrebs - Erfahrungsberichte (http://www.myprostate.eu/?req=home)

Prostatakrebs - Erfahrungsberichte (http://www.myprostate.eu/?req=user&id=317&page=report)


11th Oct 2011, 11:57
I have a cousin who had a fairly large (6 cm) tumor removed from his pancreas a month or so ago. He's been getting good care and doing "well", but reading about Steve Jobs' pretty benign form of pancreatic cancer isn't doing much to help me with the state of denial I want to live in for a little bit longer.

I'm not the one who's ailing, yet not being able to do a thing to help hurts.

:ugh: :ugh: :ugh: :ugh: :ugh:

11th Oct 2011, 12:59

Whose PCa site in Oz is closing?


11th Oct 2011, 23:36
Site is as follows:

Prostate Cancer Survivors (http://www.yananow.org/)


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